A unique partnership of Patients' Organisations, Science and Industry on the island of Ireland.IPPOSI provides a structured way of facilitating interaction between these three key membership groups and where possible with State Agencies on policy, legislation and regulation around the development of new medicines, products, devices and diagnostics for unmet medical needs in Ireland. Read more...
IPPOSI will be hosting two events in the weeks ahead that you may wish to attend. Both events are open to all IPPOSI members.
The European Federation of Neurological Associations hosted a patient training workshop on pharmaceutical pricing, access and reimbursement on Wednesday April 9. IPPOSI CEO Eibhlín Mulroe spoke at the event about the role of patient advocates in health technology assessments and at the end of the morning session there was a Q&A session that included Professor Charles Normand of TCD and Dr Roisin Adams of the NCPE.
Regarding the NCPE, IPPOSI plans to post notice of rapid review and HTA decisions on our website in the weeks ahead, following redevelopment of this website.
Speaking at the Joint Oireachtas Committee on Health and Children, Minister James Reilly referenced the work being done by the HSE and the Department of Health in scoping the establishment of a national office for rare diseases in Ireland. You can read what he said here - the last five paragraphs of his speech.