IPPOSI

We are:

A unique partnership of Patient Groups/Charities, Science and Industry on the island of Ireland. As a patient led partnership, the platform provides a structured way of facilitating interaction between the three key membership groups (patients' organisations, scientists and industry (and where possible with State Agencies) on policy, legislation and regulation around the development of new medicines, products, devices and diagnostics for unmet medical needs in Ireland.

On his first official visit to Dublin, the UK Deputy Prime Minister, Nick Clegg came to University College Dublin to meet with academics, researchers, patient organisations and individuals taking part in studies led by the university.

The leader of the Liberal Democrats was accompanied by the Minister for Enterprise, Jobs and Innovation, Richard Bruton, TD, and the President of UCD, Dr Hugh Brady and was introduced to IPPOSI by Dr Stephen McDonough, GSK. IPPOSI was represented by CEO, Eibhlin Mulroe and Directors, Prof. Seamas Donnelly and Ms Margaret Webb.

Annual Conferences

IPPOSI holds 2-3 conferences annually. The Conferences in 2008/2009 have addressed topics as diverse as Rare Diseases, Clinical Research Infrastructure in Ireland, Patient Registries, Access to medicines and New Medical Technologies. Visit the EVENTS section for further information.

IPPOSI Lunch Talks

In 2009, IPPOSI launched the first in an ongoing series of Lunch Talks to be held throughout the year where IPPOSI will invite an expert guest speaker to address delegates on a topical subject of interest to our three IPPOSI member groups (patients' organisations, science, industry). Visit the EVENTS section for further information .

IPPOSI Newsletters/IPPOSI E/Alerts

IPPOSI produces quarterly IPPOSI Newsletters and monthly IPPOSI EAlerts. Should you wish to be placed on the mailing list to receive these please contact our office, visit CONTACT US.

IPPOSI Consensus Submissions to National and International Consultations

IPPOSI brings its members together to develop consensus submissions to national and international consultations of interest to our membership.

To view any of these documents, please visit the INFORMATION CENTRE section of this website.

IPPOSI Think Tanks

There are 2 IPPOSI Think Tanks and both are open to IPPOSI members.

Think Tank on Rare Diseases

Think Tank on Clinical Research Infrastructure

More information on IPPOSI Think Tanks can be found by visiting the INFORMATION CENTRE section of this website.

IPPOSI/Biobanking and Biomolecular Resources Research Infrastructure (BBMRI)

IPPOSI is the administrative support to the BBMRI Stakeholders' Group. Additional information on BBRMI activity can be found by visiting INFORMATION CENTRE section of this website

The Irish Platform for Patients' Organisations, Science and Industry (IPPOSI) have asked people to describe to the public what life is like living with a rare disease in Ireland.

Eibhlin Mulroe attends first meeting of full consortium of EU Patient Academy for Therapeutic Innovation funded under IMI third call