Annual Round Table Meeting 2017 – Thank you!

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Data Protection andDynamic’ Consent: Possible solutions to improve confidence and trust when using patient data for research.

Thank you to all speakers, and members, who attended the 2017 IPPOSI Annual Round Table Meeting with the Department of Health. We have received from great feedback about the event in the past week, and we look forward to publishing the arising Outcome Report in the next few weeks.

In the meantime, you can see pictures from the event here.

The Event Programme for the 2017 Round Table is available here.

RATIONALE

The relevance of data protection and consent has never been more topical in healthcare as it is today. The shift towards ‘big data’ and ‘real-world evidence’ is creating opportunities for health research but this also raises important challenges (e.g. anonymity, role of consent) in terms of patient confidence and trust in how patient data (and biomaterial) is used for research purposes.

Meanwhile, data compliance and the impending EU Data Protection legislation is a major issue for the collection, use and sharing of patient data, and in particular the need for greater transparency around explicit consent.

The ‘dynamic consent’ model, which is more flexible over time, and more personalised, is an example of how information technology could be used to satisfy the legal and regulatory requirements for research consent, while simultaneously providing a communication interface for interacting with patients, participants and citizens.

This event took place on June 9th 2017

9.15       Welcome: Dr Derick Mitchell, Chief Executive, IPPOSI

SESSION 1: THE IMPACT OF NEW DATA PROTECTION LAWS ON HEALTH DATA AND RESEARCH

Chair:    Dr. Derick Mitchell, Chief Executive, IPPOSI

9.30       Mr. Cathal Ryan, Office of the Data Protection Commissioner

9.50       Mr. Muiris O’Connor, Assistant Secretary, Department of Health

10.10     Ms. Jeanne Kelly, Irish Business Law Firm Mason Hayes & Curran

10.30     Q&A, followed by break – tea & coffee @10.45 (30 mins)

SESSION 2:  MAKING CONSENT MORE ‘DYNAMIC’ FOR BIOMEDICAL RESEARCH

Chair:   Dr. Anne Cody, Health Research Board

11.15     Prof. Jane Kaye, University of Oxford, United Kingdom

11.35    Ms Julie Power, Vasculitis Ireland Awareness

11.55    Dr. Gianpero Cavalleri, RCSI and Epilepsy Lighthouse Project on Electronic Health Records

12.15     Q&A, followed by close + lunch (12:45pm)

9 June 2017
 

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