We are asking ALL MEMBERS to take part in our 2018 prioritization survey, which takes just five minutes to complete. The survey provides you with a direct way to influence what IPPOSI will focus on, so we would be very grateful if you can complete it today.
Rare Disease Day 2018
IPPOSI will be in Belfast on Monday March 5th to celebrate another joint rare disease day with the NIRDP . You can still register here and we hope to see you there. Meanwhile, in case you missed it, there was an excellent profile piece of Professor Eileen Treacy in the January HRB newsletter. Professor Treacy is Clinical Lead for the National Clinical Programme for Rare Diseases.
The European Commission recently launched proposals on Health Technology Assessment (HTA) in which it outlines mandatory use of joint clinical assessments reports, after a three-year transition period. IPPOSI welcomes the EC plan and recently published this statement in response to the proposal.
IPPOSI’s Derick Mitchell is chairing a EUPATI webinar at 4pm GMT on March 15th 2018 concerning how to build stakeholder relationships at the national level. Over 100 people have registered already and all of the details – including speakers, topics etc. – are available here. As with all EUPATI webinars, you must register first before you can attend the webinar.
IPPOSI recently launched our theme for 2018 – Access to Medicines (#actiononaccess) – which you can read about in detail on our dedicated website section here. This includes a number of key actions for the year, including the recently published second Drug Iceberg Report, in partnership with the MRCG.
Gene Editing conference / Royal Irish Academy
As IPPOSI CEO, Derick Mitchell is a member of the Royal Irish Academy’s Life & Medical Sciences Committee. Derick will chair a session during an upcoming RIA-hosted conference on April 26th on the ethical implications of Gene Editing Technologies (the CRISPR-Cas9 technique) for all of life and medical science. All details are available here, email firstname.lastname@example.org for tickets (minor cost involved).
We are drawing near to the end of the Pilot Patient Education Programme and what a journey it has been! Patients, Carers, Students, Education Partners and numerous IPPOSI members have put in an enormous effort to promote patient education on clinical trials, regulatory affairs and health technology assessment. In so doing, their drive and enthusiasm has knocked the socks off everyone involved and we are really looking forward to the informal ‘graduation’ that will take place on March 12th. Expect plenty of photos from that event!