IPPOSI is pleased to announce the beginning of a new ‘patient narrative project’ on person-centered, coordinated care that IPPOSI is leading out on, in partnership with the Clinical Strategy and Programmes Division (CSPD) of the HSE. A series of regional workshops are being organised around the country as part of this project. The workshops will, [...]
The HSE's Chief Information Officer and the Clinical Strategy and Programmes Directorate are currently developing 'Personas' and 'Scenarios' to support the introduction of Electronic Health Records (EHR). As a part of this process, IPPOSI patient members* are being invited to take part in a Patients and Patient Advocates Workshop around the Personas on February 1st [...]
A North/South conference on Rare Disease in Ireland in 2017 Focusing on three key themes: The Orphan Drug Debate: Will new and innovative drugs for rare diseases be funded in Ireland? Genomics and genetic services: Is Ireland keeping pace with the rest of Europe? An update on National Rare Disease Plans: The challenges and the progress Registration for [...]
Each year, IPPOSI invites representatives from the research community to deliver a session on different aspects of clinical trials and clinical research in Ireland and beyond. The purpose of the session is to educate members with reliable, expert information about the clinical research process and environment in Ireland and in Europe. This year’s speakers are: [...]
We wish to alert you to the possibility of accessing one of 20 free places for IPPOSI Patient Members at an upcoming IPPOSI Patient Training workshop on the morning of Tuesday, November 16th, 2016 on the topic of Electronic Health Records. The workshop (entitled "In ‘Electronic Health Records’ We Trust?”) is being organised as part of [...]
The annual IPPOSI Clinical Research for non-Clinical Researchers training event will take place on December 7th 2016 in Boston College, St Stephen's Green. The agenda for the event will be published shortly, watch this space for updates on when registration opens.