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IPPOSI & Health Innovation Week – Oct 23-27th, 2017

IPPOSI is playing a major role as part of a number of upcoming events in Dublin City Centre as part of Health Innovation Week (#EH2030) - Oct. 20th to 25th, 2017. We encourage all our members to come, participate, get involved in any of the events listed here. Register here by clicking on the appropriate event. IPPOSI [...]

11 October 2017|News|Comments Off on IPPOSI & Health Innovation Week – Oct 23-27th, 2017

Patient Education Programme underway

The IPPOSI Patient Education Programme in Health Innovation kicked off on Sept. 22nd with a day-long event that introduced the 21 students and marked the beginning of Module One: Understanding Clinical Trials, led by the UCD Clinical Research Centre. Patient participants will take part in a 7-month-long education programme, consisting of three modules [...]

6 October 2017|News|Comments Off on Patient Education Programme underway

IPPOSI-MRCG Access to Medicines – Event Programme published

Registration is still open for the second Access to Medicines round table meeting – and you can see the event programme, including finalised agenda and speaker biographies by clicking on the button at the bottom. This second meeting is a follow-on from the patient-only IPPOSI-MRCG round table meeting in June 2017, and the [...]

21 September 2017|Events, News|Comments Off on IPPOSI-MRCG Access to Medicines – Event Programme published

Patient Narratives Project: PHASE 2 NOW ONLINE

IPPOSI is delighted to announce that the Patient Narratives Project, which was led by IPPOSI in Phase 1, has entered its second phase. You can review the outputs of Phase 1 here in a purpose-built section of the IPPOSI website. Phase 2 entitled 'Your Voice Matters; stories to build a better health service', [...]

14 September 2017|News|Comments Off on Patient Narratives Project: PHASE 2 NOW ONLINE

Access to Medicines: IPPOSI-MRCG Paper published

In June 2017 IPPOSI and the Medical Research Charities Group (MRCG) co-hosted a patients-only meeting on the issue of Access to Medicines in Ireland.  We are pleased to announce that the Paper arising from this meeting has been published, and is available on our website here. IPPOSI would urge our members and stakeholders [...]

30 August 2017|News|Comments Off on Access to Medicines: IPPOSI-MRCG Paper published

Webinar: biosimilars – update

Thank you to everyone who took part in our Webinar on Biosimilars on September 8th. IPPOSI is now in a position to share our draft response to the Department of Health's National Biosimilars Medicine Policy consultation. If you are a member of IPPOSI you are welcome to comment on the draft response. Email info@ipposi.ie with a request [...]

29 August 2017|Events, News|Comments Off on Webinar: biosimilars – update

Patient Education Programme: students taking part

IPPOSI wishes to thank everyone who took part in the application process to the IPPOSI Patient Education Programme pilot. We received almost 40 applications, which our independent panel of six reviewers examined in depth. Congratulations to the 21 candidates who were shortlisted to participate in the 2017 pilot programme which kicks off in September 2017. The successful [...]

24 August 2017|News|Comments Off on Patient Education Programme: students taking part

IPPOSI seeking new Board members

IPPOSI is seeking to appoint up to three new directors (board members). At the 2017 IPPOSI AGM on October 4th, 2 patient organisation positions and 1 industry position will become available on the IPPOSI Board of Directors. The IPPOSI Board of Directors (non-executive) is made up of 20 representatives from our current membership – [...]

17 August 2017|News|Comments Off on IPPOSI seeking new Board members

Data Protection & Dynamic Consent

"Possible solutions to improve confidence and trust when using patient data for research" IPPOSI is pleased to announce the publication of our Outcome Report arising from the 2017 Annual Round Table meeting with the Department of Health on the topic of Data Protection & ‘Dynamic’ Consent. Meeting Outputs (click on the bold text [...]

18 July 2017|News|Comments Off on Data Protection & Dynamic Consent

IPPOSI at the 2017 PPI Summer School, Limerick

IPPOSI took part in the University of Limerick’s second Public and Patient Involvement (PPI) Summer School (organised by the University’s Health Research Institute). Once again, we hosted an ‘Expert Patients in Action’ workshop. This was facilitated by IPPOSI’s Laura Kavanagh and Gemma Killeen, and they were joined by EUPATI fellows Joan Jordan (MS [...]

13 July 2017|News|Comments Off on IPPOSI at the 2017 PPI Summer School, Limerick
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