IPPOSI

We are:

A unique partnership of Patient Groups/Charities, Science and Industry on the island of Ireland. As a patient led partnership, the platform provides a structured way of facilitating interaction between the three key membership groups (patients' organisations, scientists and industry (and where possible with State Agencies) on policy, legislation and regulation around the development of new medicines, products, devices and diagnostics for unmet medical needs in Ireland.

Our Vision:

The IPPOSI vision is one where state of the art innovations in health care are available at the earliest stages to patients in Ireland..

We do this through:

• Expertise
• Dialoguing
• Consensus building
• Networking

IPPOSI is not a lobbying organisation but via expertise, dialogue, consensus and networking we work to smooth the path in Ireland for new medicines and therapies to move from basic science in laboratories to the patients who need them.

IPPOSI is part funded by the Health Research Board, Ireland

Background

IPPOSI - The Irish Platform for Patients' Organisations, Science and Industry (IPPOSI) was established in February 2001 at a Dublin meeting  "Therapeutics - How will Ireland Contribute - Opportunities and Threats ". IPPOSI was formally incorporated in 2005.

IPPOSI was supported in the 2001 Irish Government Health Strategy document "Making Knowledge Work for Health" and was a contributor to the Advisory Council for Science, Technology and Innovation's 2006 report "Towards Better Health: Achieving a Step Change in Health Research in Ireland". From establishment in 2001 to 2007, five key meetings were held on topics such as Orphan Medicinal Products Regulation of the EU, the Commercialisation of Health Research, EU Clinical Trials Directive and Medicines for Rare Diseases.

Since 2008 the organisation's activities have greatly increased. IPPOSI now submits to national and international public consultations, a number of Think Tanks have been created, 2-3 large conferences are held annually which are complemented by Lunch Time Talks with leading experts on current and pressing issues of concern to our member groups (patients' organisations, science, industry). Monthly Newsletters, EAlerts and tailored daily information material are now shared with IPPOSI members on relevant matters of national and international significance. Reports and briefing papers have also been drawn up on clinical research infrastructure in Ireland, Patient Registries, Access to Medicines and New Medical Technologies and Rare Diseases. Increasingly also IPPOSI is called upon to advise, facilitate interaction and information sharing between Semi State, State, NGO and Industry Bodies at national and international level.