About IPPOSI

A unique partnership of Patients' Organisations, Science and Industry on the island of Ireland.IPPOSI provides a structured way of facilitating interaction between these three key membership groups and where possible with State Agencies on policy, legislation and regulation around the development of new medicines, products, devices and diagnostics for unmet medical needs in Ireland. Read more...


Patient Video Diaries

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IPPOSI have asked people to describe to the public what life is like living with a rare disease in Ireland.

Events Calendar

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Current Members of IPPOSI

IPPOSI invites membership applications from patients' organisations, science/clinicians, pharmaceutical industry and other interested stakeholders in the health field. If you would like to become a Member of IPPOSI, please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it for further details and an application form.

 

Patient Organisations (& other charities):



Ankylosing Spondylitis Association of Ireland (ASAI)


Arthritis Ireland

Alpha One


Asthma Society of Ireland

Bee for Battens, The Saoirse Foundation

Brainwave The Irish Epilepsy Association

Chronic Pain Association

Cystic Fibrosis

Cystinosis Foundation Ireland

Debra Ireland

Dercum Disease

Diabetes Federation of Ireland

Duchenne Ireland

Ehlers Danlos Syndrome

European Assoc. of Patients Orgs of Sarcoidosis (EPOS)

Fabry Ireland

Federation of European Scleroderma Association

Fighting Blindness

Friedreich's Ataxia Society Ireland

Genetic & Rare Disorders Organisation (GRDO)

Huntington's Disease Association of Ireland

Ileostomy & Internal Pouch Support Group

Irish Cancer Society

Irish Fragile X Society

Irish Heart Foundation

Irish Hospice Foundation

Irish Kidney Association

Irish Lupus Society

Irish ME/CFS Association

Irish Motor Neurone Disease Association (IMNDA)

Irish Osteoporosis Society

Irish Patients Association

Irish Raynaud's & Scleroderma Society

Irish Sarcoidosis Support Network (ISARC)

Irish Society for Mucopolysaccharide Diseases

Meningitis Trust

Migraine Association of Ireland

 

Medical Research Charities Group (MRCG)

 

Multiple Sclerosis Ireland

 

Multiple System Atrophy (MSA)

Muscular Dystrophy Society of Ireland Ltd

Myasthenia Gravis Association

Parkinson's Association of Ireland

 

Pompe Disease

Rare Disease UK

RehabCare

Tarlov Cyst Disease

The Mater Foundation

22q11 Support Group Ireland

 


 

Ankylosing Spondylitis Association of Ireland (ASAI)

Arthritis Ireland

Asthma Society of Ireland

Bee for Battens, The Saoirse Foundation

Brainwave The Irish Epilepsy Association

Chronic Pain Association

Cystic Fibrosis

Cystinosis Foundation Ireland

Debra Ireland

Dercum Disease

Diabetes Federation of Ireland

Duchenne Ireland

Ehlers Danlos Syndrome

European Assoc. of Patients Orgs of Sarcoidosis (EPOS)

Fabry Ireland

Federation of European Scleroderma Association

Fighting Blindness

Friedreich's Ataxia Society Ireland

Genetic & Rare Disorders Organisation (GRDO)

Huntington's Disease Association of Ireland

Ileostomy & Internal Pouch Support Group

Irish Cancer Society

Irish Fragile X Society

Irish Heart Foundation

Irish Hospice Foundation

Irish Kidney Association

Irish Lupus Society

Irish ME/CFS Association

Irish Motor Neurone Disease Association (IMNDA)

Irish Osteoporosis Society

Irish Patients Association

Irish Raynaud's & Scleroderma Society

Irish Sarcoidosis Support Network (ISARC)

Irish Society for Mucopolysaccharide Diseases

Meningitis Trust

Migraine Association of Ireland

Medical Research Charities Group (MRCG)

Multiple Sclerosis Ireland

Multiple System Atrophy (MSA)

Muscular Dystrophy Society of Ireland Ltd

Myasthenia Gravis Association

Parkinson's Association of Ireland

Pompe Disease

Rare Disease UK

RehabCare

Tarlov Cyst Disease

The Mater Foundation

22q11 Support Group Ireland

Science/Clinicians:

Adelaide & Meath Hospital/National Childrens Hospital

Beaumont Hospital - Clinical Research Centre

Belfast City Hospital

Biobank Ireland Trust

Childrens University Hospitals

Cork University - Oncology Clinical Trials

CSTAR

DCU - National Institute for Cellular Biotechnology Galway University Hospital

Dublin Dental School & Hospital

Irish Medicines Board

Mater University Hospital

Midland Regional Hospital

Molecular Medicine Ireland

NCRC - National Cancer Research Centre

NCRC - National Cancer Research Centre

OLCHC - Our Ladys Childrens Hospital Crumlin

Perinatal Ireland

RCSI - Royal College of Surgeons Ireland

Royal Victoria Eye & Ear Hospital - Research Foundation

Waterford Institute of Technology School of Health Sciences

Science Foundation Ireland

Sligo General Hospital

St. James Hospital

St. James - National Centre for Pharmaeconomics

St. Vincent's University Hospital

TCD

The Belfast Trust - Regional Immunology Service

Tril - Technology Research for Independent Living

Trinity Centre for Health Sciences

UCC

UCD

UCD Research

UCD School of Law

UCD School of Medicine and Medical Science

Industry:

Abbott Laboratories

Alexion

Bayer

BioMarin

Celgene

Genzyme

GlaxoSmithKline

Janssen-Cilag

MSD

Novartis Ireland Limited

Pfizer

Roche

Sanofi-aventis

Shire Pharmaceuticals Ireland

Other:

The Board of IPPOSI represents the interest of the membership as a whole.

As well as Board Members, IPPOSI also has members from the following organisations/institutions:

Eighth Day

Enterprise Ireland

HIQA

HRB

HSC NI

HSE

IDA

IMSTA

ISQSH

State Claims Agency