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Patient Video Diaries

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IPPOSI have asked people to describe to the public what life is like living with a rare disease in Ireland.

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Membership

Membership is open to all constituent groups with an interest in healthcare research and development - Patient Representatives, Academic Science or the Healthcare Industry. The organisation is funded by membership fees from industry partners matched by Government funds, through the Health Research Board. This allows patient organisation / charity and academic partners to join without incurring financial burdens.

Please click here to download a membership application form.

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