IPPOSI

An IPPOSI Information Day took place on the 3rd of May 2013 at which Mr Liam O'Dwyer of Boardmatch Ireland addressed the topic;

‘EVERYTHING YOU NEED TO KNOW TO BECOME A BOARD MEMBER BUT WERE TOO AFRAID TO ASK’

The event was tailored towards prospective board members of patietn organisaitons' organisation, new board members and existing board members looking to strengthen their role.

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28th August 2012 IPPOSI Information Day - Clinical Trials

An IPPOSI Information Day for Patients’ Organisations, Scientists and Industry members

9.30am to 12.30pm European Parliament Information Office, Molesworth Street, Dublin 2

Members are invited to attend this information day which aims to inform members about clinical research issues. Participants will receive an introduction to clinical research and an explanation of the terminology and conventions used. You will be guided along the drug development pathway and through the clinical trial process. Participants will also explore the issue of consent and the international context of the Declaration of Helsinki and EU Directives. There is no charge for IPPOSI members to attend this event but registration is required.Register by email to This e-mail address is being protected from spambots. You need JavaScript enabled to view it or telephone 01-4071629.

Item of Note:Ms. Siobhan Gaynor, Programme Manager for Clinical and Translational Research at Molecular Medicine Ireland has agreed to facilitate this event.

17^th September Annual General Meeting

2.00pm to 5pm. Oak Room, Mansion House, Dawson Street, Dublin 2.

Item of Note: Along with the normal business of our AGM, IPPOSI will launch our information leaflet/website for patients participating in a clinical trial. Full agenda to issue at a later date.

11^th October IPPOSI Information Day - Health Technology Assessments

An IPPOSI Information Day for Patients’ Organisations, Scientists and Industry members

9.30am to 1.00pm European Parliament Information Office, Molesworth Street, Dublin 2.

This event will introduce IPPOSI members to the principles of pharmacoeconomics and the methodology used in the HTA process in Ireland and elsewhere. There is no charge for IPPOSI members to attend this event but registration is required. Register by email to  This e-mail address is being protected from spambots. You need JavaScript enabled to view it or telephone 01-4071629.

Item of Note: Prof. Michael Barry, Clinical Director of the National Centre for Pharmacoeconomics is a keynote speaker at this event. Full agenda to issue at a later date

24^th October IPPOSI Information Day - Patients’ Organisations & the Marketing Code of Practice

An IPPOSI Information Day for Patients’ Organisations, Scientists and Industry members

9.30am to 12.30pm Boston College,  42 St Stephens Green, Dublin 2.

This event will introduce IPPOSI members to the Irish Pharmaceutical Healthcare Associations’ Code of Marketing Practice. The Code sets standards of conduct in the marketing of medicinal products to healthcare professionals. The code also provides guidance to pharmaceutical companies on how to ensure their relationship with patient associations is positive, constructive, mutually beneficial and ethical.

Item of Note: Dr Rebecca Cramp, Scientific & Regulatory Affairs Manager at the Irish Pharmaceutical Healthcare Association will facilitate this event and there will be time given to questions and discussion.Full agenda to issue at a later date

The Chairperson of IPPOSI Margaret Webb officially launched the 2011 Annual Report of IPPOSI at the Annual General Meeting which took place this week at the Mansion House. The report contains highlights of the year, financial statements and a strategic plan for the coming years.

A PDF copy of the 2011 Annual Report is available for download.

Download programme here

Human Medicines Pharmacovigilance Information Day

02 December 2011

The Irish Medicines Board will hold a Human Medicines Pharmacovigilance Information Day on Friday 2nd December 2011 in the Crowne Plaza hotel, Santry.  The meeting will specifically address the implementation of the new European Pharmacovigilance legislation. 

More Information here.

"Chain of Trust" Online Survey

The European Patients' Forum (EPF) is implementing, together with other six partners, an EU project co-financed by the EU Public Health Programme called "Chain of Trust". Started in January 2011, this project aims to assess the perspectives of the main end users of telehealth services, i.e. patients, doctors, nurses and pharmacists across the EU to see whether and how views have evolved since the initial deployment of telehealth and what barriers there still are to building confidence in and acceptance of this innovative type of services.

For more information on Chain of Trust, please visit the project website at www.chainoftrust.eu or contact Liuska Sanna or Walter Atzori.

One of the tools that the Chain of Trust consortium is using in order to assess the views of patients and health professionals on telehealth is an online survey. This survey, which is available in 11 languages, is aimed at both users and non-users of telehealth services and consists of two questionnaires, one for patients and one for health professionals.

The online questionnaires can be accessed directly using the links listed below.

IPPOSI Members Meeting 23rd May 2011 - Presentation by Dr. Paula Byrne UCD

Rare Genetic Disorders and the Medical Health Care Professional

available to download here

Pat O’Mahony Chief Executive addresses IPPOSI Members

available to download here