About IPPOSI

A unique partnership of Patients' Organisations, Science and Industry on the island of Ireland.IPPOSI provides a structured way of facilitating interaction between these three key membership groups and where possible with State Agencies on policy, legislation and regulation around the development of new medicines, products, devices and diagnostics for unmet medical needs in Ireland. Read more...


Patient Video Diaries

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IPPOSI have asked people to describe to the public what life is like living with a rare disease in Ireland.

Events Calendar

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IPPOSI Consensus Submissions
IPPOSI Consensus Response to the Department of Health and Children Expert Group on Resource Allocation and Financing in the Health Sector (2009) PDF Print E-mail
Friday, 17 July 2009 11:24
To view the IPPOSI Consensus Response to the Department of Health and Children Expert Group on Resource Allocation and Financing in the Health Sector (2009), please click here
 
Submission to the Department of Health and Children's Discussion Paper on the Proposed Health Information Bill PDF Print E-mail
Thursday, 25 June 2009 13:35
Please click here for a copy of the IPPOSI submission. The submission is based on input and discussion at the IPPOSI Patient Registries in Ireland - Where we go from here meeting.
 
IPPOSI Submission to the Department of Health and Children's Discussion Paper on the Proposed Health Information Bill (2008) PDF Print E-mail
Friday, 17 July 2009 11:26
To view the IPPOSI Submission to the Department of Health and Children's Discussion Paper on the Proposed Health Information Bill (2008), please click here.
 
IPPOSI Response to Draft Report "Recommendations for the establishment of a national cancer biobank" (2008) PDF Print E-mail
Friday, 17 July 2009 11:27
To view the IPPOSI Response to Draft Report "Recommendations for the establishment of a national cancer biobank" (2008), please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it
 
Expert Group Draft Report on National Cancer Biobank PDF Print E-mail
Monday, 14 July 2008 17:26

IPPOSI has responded to the 'Expert Group Draft Report on National Cancer Biobank'. If you would like a copy please contact Karen Munnelly on This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 
 
IPPOSI Submission to the EU Public Consultation - "Rare Diseases - Europe's Challenges" (2008) PDF Print E-mail
Friday, 17 July 2009 11:28
To view the IPPOSI Submission to the EU Public Consultation - "Rare Diseases - Europe's Challenges" (2008), please click here.
 
IPPOSI Consensus response to the EC Public Consultation "Legal Proposal on Information to Patients" (2008) PDF Print E-mail
Friday, 17 July 2009 11:28
To view the IPPOSI Consensus response to the EC Public Consultation "Legal Proposal on Information to Patients" (2008), please click here.
 
European Commission Public Consultation on 'Legal Proposal on Information to Patients' PDF Print E-mail
Wednesday, 12 March 2008 15:58

On Tuesday the 11th of March, IPPOSI facilitated a discussion on the European Commission public consultation on the 'Legal Proposal on Information to Patients.  The text of the final submission is now available here.
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