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Patient Video Diaries

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IPPOSI have asked people to describe to the public what life is like living with a rare disease in Ireland.

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Patient Registries
Towards a National Strategy for Patients Registries Report PDF Print E-mail
Tuesday, 18 October 2011 15:26
Download document here.
 
Patient Registries Meeting 10 May 2011– Presentation by Fionnuala Donohue DoHC PDF Print E-mail
Friday, 27 May 2011 13:50

Presentation from our recent MRCG/IPPOSI Event by Fionnuala Donohue DoHC:

Towards a National Strategy for Patient Registries in Ireland

available to download here
 
PATIENT REGISTRIES PDF Print E-mail
Tuesday, 22 March 2011 12:22

TOWARDS A NATIONAL STRATEGY FOR PATIENT REGISTRIES IN IRELAND

TUESDAY, 10th MAY, 2011,

1pm – 4pm (12.30pm lunch)

European Union House, Dawson St, Dublin 2

 

REGISTRATION REQUIRED

 

SEE EVENT ARTICLES FOR FULL DETAILS
 
General Information on Patient Registries PDF Print E-mail
Wednesday, 24 June 2009 10:34
For more information on Patient Registries click here.
 
Submission to the Department of Health and Children's Discussion Paper on the Proposed Health Information Bill PDF Print E-mail
Thursday, 25 June 2009 15:18
Please click here for a copy of the IPPOSI submission. The submission is based on input and discussion at the IPPOSI Patient Registries in Ireland - Where we go from here meeting.
 
Patient Registries in Ireland - Where we go from here? Clarion Hotel, IFSC, September 22nd 2008 PDF Print E-mail
Wednesday, 24 June 2009 10:17

Please click here for a copy of the conference programme.

For a copy of the press release please click here.

Please click here for a copy of the outcome report.