About IPPOSI

A unique partnership of Patients' Organisations, Science and Industry on the island of Ireland.IPPOSI provides a structured way of facilitating interaction between these three key membership groups and where possible with State Agencies on policy, legislation and regulation around the development of new medicines, products, devices and diagnostics for unmet medical needs in Ireland. Read more...


Patient Video Diaries

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IPPOSI have asked people to describe to the public what life is like living with a rare disease in Ireland.

Upcoming Events

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Events Calendar

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Patient Registries
Towards a National Strategy for Patients Registries Report PDF Print E-mail
Tuesday, 18 October 2011 15:26
Download document here.
 
Patient Registries Meeting 10 May 2011– Presentation by Fionnuala Donohue DoHC PDF Print E-mail
Friday, 27 May 2011 13:50

Presentation from our recent MRCG/IPPOSI Event by Fionnuala Donohue DoHC:

Towards a National Strategy for Patient Registries in Ireland

available to download here
 
PATIENT REGISTRIES PDF Print E-mail
Tuesday, 22 March 2011 12:22

TOWARDS A NATIONAL STRATEGY FOR PATIENT REGISTRIES IN IRELAND

TUESDAY, 10th MAY, 2011,

1pm – 4pm (12.30pm lunch)

European Union House, Dawson St, Dublin 2

 

REGISTRATION REQUIRED

 

SEE EVENT ARTICLES FOR FULL DETAILS
 
General Information on Patient Registries PDF Print E-mail
Wednesday, 24 June 2009 10:34
For more information on Patient Registries click here.
 
Submission to the Department of Health and Children's Discussion Paper on the Proposed Health Information Bill PDF Print E-mail
Thursday, 25 June 2009 15:18
Please click here for a copy of the IPPOSI submission. The submission is based on input and discussion at the IPPOSI Patient Registries in Ireland - Where we go from here meeting.
 
Patient Registries in Ireland - Where we go from here? Clarion Hotel, IFSC, September 22nd 2008 PDF Print E-mail
Wednesday, 24 June 2009 10:17

Please click here for a copy of the conference programme.

For a copy of the press release please click here.

Please click here for a copy of the outcome report.
 
An Update on Forthcoming Legislation PDF Print E-mail
Tuesday, 27 November 2012 10:28
update_forthcoming_legislation
On Wednesday 12th of December IPPOSI and MRCG held An Update on Forthcoming Legislation, a member’s information meeting which dealt with the research aspects of the Health Information Bill and the Human Tissue Bill, key pieces of legislation which will be published in 2012/2013. The measures contained in these bills will impact the health research environment in Ireland and are expected to contain new policy initiatives in the areas of population health registers, the structure and regulation of research ethics approval and regulations for the removal, retention, storage, use and disposal of human tissue.

Speaker: Bernie Ryan of the Corporate Legislation Unit of the Department of Health briefed members on the research aspects of these bills and also provided an opportunity to discuss the implications of these legislative changes.
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