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Friday, 19 February 2010 16:43 |
European Rare Diseases Day - Joint Initiative Information Day
IPPOSI, MRCG and GRDO
Thursday 25th February 2010, 10am – 2pm
European Public Space, European Union House, 18 Dawson Street, Dublin 2
For the meeting agenda, click here.
For Minister Aine Brady's Speech, click here.
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Read more...
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Thursday, 08 October 2009 09:09 |
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The IPPOSI Think Tank on Rare Diseases aims to progress issues arising from the 2007 IPPOSI/IMB Rare Disease Report together with key stakeholders including members of Genetic and Rare Disorders Organisation (GRDO) and the Medical Research Charities Group (MRCG). One of the main activities for the Think Tank will be to work towards the development of a comprehensive national plan for rare diseases in Ireland. As a non lobbying organisation, IPPOSI's role will be to facilitate discussion and consensus building, ensuring that key policy and practical endeavours at national and international level in this area are shared. The MRCG and GRDO in their capacities will work towards progressing operationalisation by actively engaging with decision makers. |
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Wednesday, 24 June 2009 10:01 |
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For more information on rare diseases please click here for a copy of the IPPOSI information document. |
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Thursday, 15 January 2009 10:27 |
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"Focus on Rare Diseases in Ireland; What is the National Plan?"
Wednesday 25 February 2009
European Public Information Centre (EPIC), European Union House, 18 Dawson Street, Dublin 2
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Read more...
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Thursday, 21 February 2008 16:32 |
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The full report from the meeting held on the 9th of November 2007 is now available. Please click here. |
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Friday, 15 February 2008 15:18 |
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For a copy of the press release please click here.
The Irish Platform for Patients’ Organisations, Science and Industry (IPPOSI) was set up to provide a platform for discussion in Ireland on the development of new therapies and treatments for unmet medical needs....
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Read more...
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Wednesday, 06 February 2008 16:34 |
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Friday, February 29th 2008 - 'A Rare Day for Rare Disorders'.
IPPOSI, MRCG and RehabCare joined GRDO in celebrating the first ever European Rare Diseases Day. A press conference was held in the Mansion House, Dublin.
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View photos of this event
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Information Centre 
