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Monday, 24 October 2011 15:43 |
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Rare Diseases News Vol 1, Issue 1
Download here |
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Wednesday, 16 February 2011 10:39 |
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RARE DISEASE DAY 2011 - ROYAL COLLEGE OF PHYSICIANS 28TH FEBRUARY 2011 5.30-7.30 P.M. - TO REGISTER PLEASE CONTACT:
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Wednesday, 24 November 2010 12:22 |
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European Rare Disease Day Report.Launched on the 24th November 2010. To download report click here |
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Tuesday, 23 November 2010 16:02 |
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The Irish Platform for Patients' Organisations, Science and Industry (IPPOSI) have asked people to describe to the public what life is like living with a rare disease in Ireland.
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Read more...
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Friday, 19 February 2010 16:43 |
European Rare Diseases Day - Joint Initiative Information Day
IPPOSI, MRCG and GRDO
Thursday 25th February 2010, 10am – 2pm
European Public Space, European Union House, 18 Dawson Street, Dublin 2
For the meeting agenda, click here.
For Minister Aine Brady's Speech, click here.
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Read more...
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Thursday, 08 October 2009 09:09 |
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The IPPOSI Think Tank on Rare Diseases aims to progress issues arising from the 2007 IPPOSI/IMB Rare Disease Report together with key stakeholders including members of Genetic and Rare Disorders Organisation (GRDO) and the Medical Research Charities Group (MRCG). One of the main activities for the Think Tank will be to work towards the development of a comprehensive national plan for rare diseases in Ireland. As a non lobbying organisation, IPPOSI's role will be to facilitate discussion and consensus building, ensuring that key policy and practical endeavours at national and international level in this area are shared. The MRCG and GRDO in their capacities will work towards progressing operationalisation by actively engaging with decision makers. |
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Wednesday, 24 June 2009 10:01 |
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For more information on rare diseases please click here for a copy of the IPPOSI information document. |
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Thursday, 15 January 2009 10:27 |
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"Focus on Rare Diseases in Ireland; What is the National Plan?"
Wednesday 25 February 2009
European Public Information Centre (EPIC), European Union House, 18 Dawson Street, Dublin 2
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Read more...
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