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IPPOSI have asked people to describe to the public what life is like living with a rare disease in Ireland.

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Stakeholders' Forum - BBMRI
About BBMRI PDF Print E-mail
Friday, 03 July 2009 13:53

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Recently voted by TIME magazine as one of the “10 Ideas Changing the World Right Now”, Biobanks or Biobanking is thought of as a safe house for tissue samples, tumor cells, DNA and blood — that can be used for research into new treatments for diseases.

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BBMRI Stakeholders' Forum PDF Print E-mail
Monday, 18 January 2010 16:38

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The BBMRI Stakeholders' Forum is assembling the input and requirements of the broad and heterogeneous stakeholder community of BBMRI, comprising patients, clinicians, funding organizations, associated project partners, industry, and users.

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Patient Working Group PDF Print E-mail
Monday, 18 January 2010 16:41

Representative patient organisations are a crucible of observation and experience which justify their place as partners in research. Indeed, an increasing number of patient organisations are working towards creating their own databank or biorepository.


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