About IPPOSI

A unique partnership of Patients' Organisations, Science and Industry on the island of Ireland.IPPOSI provides a structured way of facilitating interaction between these three key membership groups and where possible with State Agencies on policy, legislation and regulation around the development of new medicines, products, devices and diagnostics for unmet medical needs in Ireland. Read more...


Patient Video Diaries

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IPPOSI have asked people to describe to the public what life is like living with a rare disease in Ireland.

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News
Rare Disorder Without Borders PDF Print E-mail
Monday, 13 May 2013 14:07

Delegates at the recent Rare Disorder Without Borders event may remember Jamie O'Brien a 22 year old student from Louth who suffers from the incredibly rare disease, Ehler-Danlos Syndrome Type 3. Jamie along with others who have rare conditions featured in the Patients Perspective video at the conference and articulated the need for greater cross border collaboration between health services in the EU.

On the 23rd April, Jamie told TV3's Ireland AM of his plight and was joined by IPPOSI CEO Eibhlin Mulroe. Since this interview was broadcast, Jamie O'Brien has received the good news that his local HSE will facilitate his initial treatment in the UK. To view the interview from the channel's 3Player http://www.tv3.ie/3player/show/184/61868/0/Ireland-AM .

 
A Focus on Patient Compliance & Adherence in 2013 PDF Print E-mail
Monday, 13 May 2013 13:59

IPPOSI 2013 Roundtable Meeting: A Focus on Patient Compliance & Adherence in 2013
27th June 2013, European Parliament Information Office, Molesworth Street, Dublin 2.
9.30am - 1pm

 

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WE HAVE MOVED PDF Print E-mail
Thursday, 18 April 2013 00:00

camden_business_centre_mapDue to the pending sale of our previous building, IPPOSI has moved offices and would like members to note and save our new contact details . 

NEW PHONE NUMBER

01 4790552

NEW ADDRESS

Camden Business Centre, 
12 Camden Row, Dublin 8


Our email and website details remain
the same.


 
Experts for Horizon 2020 Advisory Groups PDF Print E-mail
Monday, 04 March 2013 00:00

 

Experts for Horizon 2020 Advisory Groups: Call for expressions of interest The European Commission is widening its search for experts from all fields to participate in shaping the agenda of Horizon 2020, the European Union's future funding programme for research and innovation. The experts of the advisory groups will provide high quality and timely advice for the preparation of the Horizon 2020 calls for project proposals. The Commission services plan to set up a certain number of Advisory Groups covering the Societal Challenges and other specific objectives of Horizon 2020. To reach the broadest range of individuals and actors with profiles suited to contribute to the European Union's vision and objectives for Horizon 2020, including striving for a large proportion of newcomers, and to gain consistent and consolidated advice of high quality, the Commission is calling for expressions of interest with the aim of creating lists of high level experts that will participate in each of these groups. Important Notice: The composition of the groups and the topics they will address may need to be adjusted to be fully in line with the final versions of the Horizon 2020 legislative acts. The call for expressions of interest will stay open for the lifetime of the Horizon 2020 programme. Experts can register at any time; however only those having expressed their interest no later than 6 March 2013 at 17.00, Brussels local time (CET) will be taken into account for the setting up of the first Horizon 2020 Advisory Groups. Expressions of interest received after this date will be taken into account for the renewal of groups at the end of each mandate. Individuals in their personal capacity, representatives of collective interest groups and representatives of organisations can express their interest. Each advisory group shall be representative of the broad constituency of stakeholders, including industry and research actors as well as representatives of civil society, for the Horizon 2020 challenges/objectives concerned. The experts of the group will be designated in accordance with the Commission rules on expert groups. Expertise is called for within the following areas:

o Future and Emerging Technologies (FET)

o Marie Skłodowska-Curie actions on skills, training and career development

o Research infrastructures (including e-Infrastructures)

o Leadership in enabling and industrial technologies within the following areas:

o Information and Communication Technologies (ICT)*1

o Nanotechnologies

o Advanced materials

o Biotechnology o Advanced manufacturing and processing

o Space o Access to risk finance (debt or equity financing)

o Innovation in small and medium-sized enterprises (SMEs)

o Health, demographic change and wellbeing

o Food security, sustainable agriculture, marine and maritime research and the bio-economy

o Secure, clean and efficient energy (including nuclear energy)

o Smart, green and integrated transport

o Climate action, resource efficiency and raw materials

o Inclusive, innovative and secure societies

Download more informaiton

 
Consultation Process: National Healthcare Charter - Paediatric Services PDF Print E-mail
Friday, 21 December 2012 10:05

CONSULTATION PROCESS:NATIONAL HEALTHCARE CHARTER –PAEDIATRIC SERVICES

The Department of Health together with the Health Service Executive (HSE) in 2008 committed to the development of a National Healthcare Charter. In 2010, the National Healthcare Charter, which is titled You and Your Health Service, was developed with input from many interested parties, including patient advocacy groups and individual advocates.

Feedback from patient advocacy groups highlighted that while this Charter was suitable for adult services, there were gaps in its application to paediatric care. In response to this need, the National Clinical Programme for Paediatrics worked in collaboration with the National Advocacy Unit, HSE and a Parents Reference Group established under the Paediatric Clinical Programme to develop and adapt the National Healthcare Charter for paediatric services.

The Draft National Healthcare Charter-Paediatric Services describing what children, young people and parents can expect when using health services in Ireland, and what they can do to help Irish health services to deliver more effective and safe services. This document “A draft consultation document –The National Healthcare Charter, Paediatric Services” is based on principles identified in adult health care services but adapted to suit the needs of children, young people, and parents in paediatric services. This consultation process will inform the development and implementation of a National Paediatric Charter across all children’s and young people’s services in Ireland Your feedback about this document matters, all feedback will be taken into consideration and the final publication will reflect the feedback from many stakeholders who submit their comments, thoughts and ideas for improving services for children and young people in Ireland. Please send all of feedback comments or suggestions to This e-mail address is being protected from spambots. You need JavaScript enabled to view it by 2pm Thursday 31st January 2013

National Healthcare Charter - Paediatrics - Draft for Consultation  (.pdf - 669 KB)

Paediatric Healthcare Charter - Wallchart  (.pdf - 583 KB)

 
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