This IPPOSI-led programme delivers training for Irish patients on health research and innovation including modules on clinical trials, medicines regulatory affairs and health technology assessment.
The programme is designed to enable and empower more patients and patient advocates to work effectively with Irish and EU-level health research & technology partners, agencies & authorities.
The programme thus supports new research and policy advances in areas where the importance of a strong patient voice is called for, but where there is currently clearly a shortage of patient contributors with the right skills set.
For people who are in a position to meet the IPPOSI commitment asked for, and take the time to learn, the rewards are significant:
- You gain an understanding of the health innovation system and the patient’s (potential) place in it.
- You develop the confidence and knowledge to speak more effectively on behalf of yourself and those you represent, because you have learned some of the language of the scientific, medical & healthcare communities.
- You are empowered to seek more opportunities to get involved
- You will develop your networks, as well as meeting some like-minded people as yourself!
The programme is based on IPPOSI’s experience of playing a leading role in the successful European Patient’s Academy for Therapeutic Development (EUPATI) which has developed and implemented a pan-European ‘patient expert training course’ focusing on the medicines R&D process (www.eupati.eu) . Nine Irish patient advocates have successfully completed the EUPATI course, graduating as EUPATI fellows in December 2016