Since 2016, IPPOSI has partnered with Clinical Research Coordination Ireland (CRCI) on the topic of patient and public involvement (PPI) in clinical research.
A working group consisting of IPPOSI board members, the network of Clinical Research Centres/Facilities in Ireland, as well as CRCI and IPPOSI representatives is working collaboratively on a number of activities under the CRCI and IPPOSI umbrellas, to promote active PPI as part of the infrastructure for clinical research in Ireland. The group meets on a quarterly basis, usually in one of the CRCs/CRFs around Ireland.
Activities completed to date (February 2017)
- Development of a shared definition of PPI (Shared Definition of PPI)
- Collation of existing PPI expertise (members only resource)
Members of the Working Group (February 2017)
|Mary||Codd||Director of CSTAR|
|Mary||Costello||National Children’s Research Centre|
|Miriam||Costello||HRB Clinical Research Facility, NUI Galway|
|Imelda||Doolan||Health Research Institute, University of Limerick|
|Ciara||Fahey||St. Vincents University Hospital|
|Aoife||Harvey||Clinical Research Facility – Cork|
|Maeve||Kelsey||Clinical Research Facility – Cork|
|Edel||Murphy||Primary care network|
|Damian||O’Driscoll||Clinical Research Facility – Cork|
|Eilis||O’Toole||St. James Hospital|
|Katrina||Tobin||Irish Stroke Clinical Trials Network|
|Mairead||Waldron||HRB Clinical Research Facility, NUI Galway|
|Jean||Conway||The Irish Centre for Fetal and Neonatal Translational Research (INFANT)|
For more information on CRCI, visit https://www.hrb-crci.ie.
For more IPPOSI activities in the area of PPI, visit our ♯PatientsInvolved page.