Since 2016, IPPOSI has partnered with Clinical Research Coordination Ireland (CRCI) on the topic of patient and public involvement (PPI) in clinical research.

A working group consisting of IPPOSI board members, the network of Clinical Research Centres/Facilities in Ireland, as well as CRCI and IPPOSI representatives is working collaboratively on a number of activities under the CRCI and IPPOSI umbrellas, to promote active PPI as part of the infrastructure for clinical research in Ireland. The group meets on a quarterly basis, usually in one of the CRCs/CRFs around Ireland.

Activities completed to date (October 2017)

  1. Development of a shared definition of PPI (Shared Definition of PPI)
  2. Collation of existing PPI expertise (repository index here – contains links for many resources that are publicly available online)
  3. Terms of Reference agreed
  4. Annual Plan currently in development

Roles appointed:

  1. Chairperson: Edel Murphy, HRB Primary Care CTNI
  2. Deputy chairperson: Eilis O’Toole, St. James Hospital
Members of the Working Group (October 2017)
Edel Murphy HRB Primary Care CTNI
Eilis O’Toole St. James Hospital
Niamh Clarke Dept.Surgery Research Group St James Hospital/TCD
Mary Codd Director of CSTAR
Anne Cody Health Research Board
Jean Conway The Irish Centre for Fetal and Neonatal Translational Research (INFANT)
Sharon Conway HRB Clinical Research Facility, NUI Galway
Mary Costello National Children’s Research Centre
Imelda Doolan Health Research Institute, University of Limerick
Ciara Fahey St. Vincents University Hospital
Sandra Galvin HRB Trials Methodology Research Network
Aoife Harvey Clinical Research Facility – Cork
Deirdre Hyland RCSI
Joan Jordan MS Ireland
Fionnuala Keane HRB CRCI
Avril Keenan Medical Research Charities Group
Terri Martin Clinical Research Centre UCD
Derick Mitchell IPPOSI
Niamh Murphy Novartis
Damian O’Driscoll Clinical Research Facility – Cork
Tom O’Leary ICON
Ciara Peters HRB CRCI
Julie Power Vasculitis Awareness Ireland
Michelle Queally Health Economics and Policy Analysis, NUI Galway
Maria Ryan Clinical Research Support Unit, University of Limerick
Katrina Tobin Irish Stroke Clinical Trials Network
Mairead Waldron HRB Clinical Research Facility, NUI Galway
Rachel Lynch FibroIreland

 

For more information on CRCI, visit https://www.hrb-crci.ie.

For more IPPOSI activities in the area of PPI, visit our ♯PatientsInvolved page.