Since 2016, IPPOSI has partnered with Clinical Research Coordination Ireland (CRCI) on the topic of patient and public involvement (PPI) in clinical research.

A working group consisting of IPPOSI board members, the network of Clinical Research Centres/Facilities in Ireland, as well as CRCI and IPPOSI representatives is working collaboratively on a number of activities under the CRCI and IPPOSI umbrellas, to promote active PPI as part of the infrastructure for clinical research in Ireland. The group meets on a quarterly basis, usually in one of the CRCs/CRFs around Ireland.

Activities completed to date (February 2017)

  1. Development of a shared definition of PPI (Shared Definition of PPI)
  2. Collation of existing PPI expertise (members only resource)

Members of the Working Group (February 2017)

First Name Surname Organisation
Mary Codd Director of CSTAR
Anne Cody HRB
Mary Costello National Children’s Research Centre
Miriam Costello HRB Clinical Research Facility, NUI Galway
Imelda Doolan Health Research Institute, University of Limerick
Ciara Fahey St. Vincents University Hospital
Aoife Harvey Clinical Research Facility – Cork
Deirdre Hyland RCSI
Fionnuala Keane HRB CRCI
Maeve Kelsey Clinical Research Facility – Cork
Terri Martin UCD
Derick Mitchell IPPOSI
Edel Murphy Primary care network
Damian O’Driscoll Clinical Research Facility – Cork
Tom O’Leary ICON
Niamh Murphy Novartis
Eilis O’Toole St. James Hospital
Averil Power Asthma Society
Katrina Tobin Irish Stroke Clinical Trials Network
Mairead Waldron HRB Clinical Research Facility, NUI Galway
Jean Conway The Irish Centre for Fetal and Neonatal Translational Research (INFANT)

 

For more information on CRCI, visit https://www.hrb-crci.ie.

For more IPPOSI activities in the area of PPI, visit our ♯PatientsInvolved page.