Since 2016, IPPOSI has partnered with Clinical Research Coordination Ireland (CRCI) on the topic of patient and public involvement (PPI) in clinical research.
A working group consisting of IPPOSI board members, the network of Clinical Research Centres/Facilities in Ireland, as well as CRCI and IPPOSI representatives is working collaboratively on a number of activities under the CRCI and IPPOSI umbrellas, to promote active PPI as part of the infrastructure for clinical research in Ireland. The group meets on a quarterly basis, usually in one of the CRCs/CRFs around Ireland.
Activities completed to date (October 2017)
- Development of a shared definition of PPI (Shared Definition of PPI)
- Collation of existing PPI expertise (repository index here – contains links for many resources that are publicly available online)
- Terms of Reference agreed
- Annual Plan currently in development
- Chairperson: Edel Murphy, HRB Primary Care CTNI
- Deputy chairperson: Eilis O’Toole, St. James Hospital
Members of the Working Group (October 2017)
|Edel||Murphy||HRB Primary Care CTNI|
|Eilis||O’Toole||St. James Hospital|
|Niamh||Clarke||Dept.Surgery Research Group St James Hospital/TCD|
|Mary||Codd||Director of CSTAR|
|Anne||Cody||Health Research Board|
|Jean||Conway||The Irish Centre for Fetal and Neonatal Translational Research (INFANT)|
|Sharon||Conway||HRB Clinical Research Facility, NUI Galway|
|Mary||Costello||National Children’s Research Centre|
|Imelda||Doolan||Health Research Institute, University of Limerick|
|Ciara||Fahey||St. Vincents University Hospital|
|Sandra||Galvin||HRB Trials Methodology Research Network|
|Aoife||Harvey||Clinical Research Facility – Cork|
|Avril||Keenan||Medical Research Charities Group|
|Terri||Martin||Clinical Research Centre UCD|
|Damian||O’Driscoll||Clinical Research Facility – Cork|
|Julie||Power||Vasculitis Awareness Ireland|
|Michelle||Queally||Health Economics and Policy Analysis, NUI Galway|
|Maria||Ryan||Clinical Research Support Unit, University of Limerick|
|Katrina||Tobin||Irish Stroke Clinical Trials Network|
|Mairead||Waldron||HRB Clinical Research Facility, NUI Galway|
For more information on CRCI, visit https://www.hrb-crci.ie.
For more IPPOSI activities in the area of PPI, visit our ♯PatientsInvolved page.