Irish Platform for Patient Organisations, Science & Industry

The Minister launched the National Rare Disease Office in the Mater Hospital today. See pictures below and some press coverage here.

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Godfrey Fletcher, IPPOSI Chair; Dr Sean Ennis (UCD); Dr Paula Byrne (UCD, IPPOSI Board); Dr Dmitri Wall

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Jamie O’Brien, Ms Eibhlin Mulroe (former IPPOSI CEO); Minister Leo Varadkar

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Minister for Health, Leo Varadkar, TD

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Professor Eileen Treacy, HSE Clinical Lead on Rare Diseases

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Mr Philip Watt, CF Ireland CEO, MRCG Chair

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Rare Diseases Information Booth, Eccles St entrance, Mater Hospital

2018-02-13T09:59:17+00:0021 September 2016|News|0 Comments

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