The Minister launched the National Rare Disease Office in the Mater Hospital today. See pictures below and some press coverage here.
Godfrey Fletcher, IPPOSI Chair; Dr Sean Ennis (UCD); Dr Paula Byrne (UCD, IPPOSI Board); Dr Dmitri Wall
Jamie O’Brien, Ms Eibhlin Mulroe (former IPPOSI CEO); Minister Leo Varadkar
Minister for Health, Leo Varadkar, TD
Professor Eileen Treacy, HSE Clinical Lead on Rare Diseases
Mr Philip Watt, CF Ireland CEO, MRCG Chair
Rare Diseases Information Booth, Eccles St entrance, Mater Hospital