IPPOSI and MRCG have submitted a joint letter to the Department of Health following the news announced on Nov 15th that a Department-led working group is being established on exploring the challenges in accessing innovative medicines in Ireland. The letter calls for at least two patient representatives to be invited onto the group, and was accompanied by a copy of the Drug Iceberg Report, which is currently being updated to include the discussions that took place at the second Access to Medicines meeting in October this year.
Patient Education Programme: Module 2 underway
This month our cohort of 21 students completed the Clinical Trials module of the programme with UCD CRC and went straight into Regulatory Affairs with the HPRA. This second module will finish in mid-December, and in January 2018 the students will enter the third and final phase of the pilot programme: Health Technology Assessment.
IPPOSI will be speaking at this year’s SCI:COM (December 7th) in the Ballsbridge Hotel. Everything you need to know is here, and as a part of a lead up to the event, Derick Mitchell spoke to Dr Ciara Kelly on Newstalk’s Alive and Kicking show about public and patient involvement. You can listen to that interview here – the media player is the black bar along the top of your browser window, skip the progress bar along 40% to find Derick’s interview.
Consultations & Submissions
IPPOSI has made a submission to the Department of Health in relation to the Draft Health Information Framework consultation. You can see that submission on our website here. Meanwhile, IPPOSI also submitted a document to HIQA as a part of its consultation on HTA Guidelines. That submission is available here. Finally, we also submitted this document to contribute to the HIQA HTA Budget Impact Analysis consultation.
European Congress on Personalised Medicine (EAPM)
It was a busy week in Belfast for the EAPM meeting as part of the Estonian Presidency of the EU. IPPOSI made this presentation as part of the ‘Personalised Medicine and Public Health: Two Sides of the Same Coin?’ session. Meanwhile many IPPOSI friends were spread across the agenda, which you can see here.
It was great to take part in this year’s ISPOR European meeting, and wonderful to see IPPOSI (and other Irish stakeholders) describing their experiences on an international stage. Particular thanks must go to IPPOSI’s EUPATI Content Co-ordinator, Joan Jordan, for her presentation in the dedicated session on patient involvement in HTA in Ireland. IPPOSI’s ISPOR presentation is here.
Following a meeting of the Steering Group, a report was produced that, among other things, provides an overview of activities since the transition from IMI to the European Patients Forum (EPF) in February 2017. Highlights of the report include:
A fully functional management team complete with the recent addition of the Alumni Coordinator (Florian Klett) and a Content Coordinator (Joan Jordan) – both EUPATI fellows
Successful launch of the third expert training course with almost 60 participants from 28 countries, including 4 Irish students.