Newsletter June 2018

//Newsletter June 2018

October Conference – register now!

85 of 120 seats are now filled, and registration only opened a week ago. We encourage you to register early. The conference title is: “Patient-Centred Outcomes in Research and Healthcare”, and further information is available on this web page, including a ‘Terminology Explained’ briefing document here.


Health Innovation Hub Ireland: Call for 2018

Health Innovation Hub Ireland is seeking project proposals from companies or entities whose innovative products or services are, at a minimum, at pre-commercial, demonstration or late development phase and have the potential to significantly impact healthcare in Ireland and internationally. Further details, including assessment criteria and application requirements are available here. Deadline: August 31st 2018.

Integrated Care / HSE Your Voice Matters

The Your Voice Matters initiative is being used in the South East Community Healthcare Organisation (counties Carlow, Kilkenny, Tipperary South, Waterford and Wexford) to hear the experiences of people who use health and social care services in the area. The information collected will be used at a workshop in Kilkenny on the 22nd October 2018 to guide and influence the design and improvement of health and social care services. Health staff and patients / service users and carers are invited to this workshop. (Please contact [email protected] to book a place). Go here to see how IPPOSI’s work on the Patient Narratives Project helped to inform the Your Voice Matters initiative.


IPPOSI was part of a delegation of patient-led organisations that met with the EU Article 50 Taskforce to advocate for the protection of the health and safety all European patients (UK patients included) during the ongoing Brexit negotiations. More detail on that here.

National Clinical Programme for Rare Diseases – Workshop report

In February this year, the NCPRD met in the Royal College of Physicians for a workshop on Clinical Research in Rare Diseases. The report from that event is now available here. IPPOSI chaired a panel discussion at the workshop, the highlights of which are outlined on pages 10 & 11 of the report.

Understanding Genetics

The UCD School of Medicine has produced two excellent video animations to help people better understand genetics, and specifically 1) Copy Number Variation, and 2) Variants of Unknown Significance. We highly recommend these clips to interested parties, they are available on the UCD website here (bottom two clips).

HPV News / HIQA consultation

The Health Information and Quality Authority will shortly commence a public consultation concerning a Health Technology Assessment on extending the current HPV immunization programme to include boys. More information here.

2018-07-05T16:33:56+01:00 5 July 2018|Newsletters|0 Comments

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