Rare Disease Day 2019

//Rare Disease Day 2019


The 12th annual Rare Disease Day focuses on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families face every day. Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better coordinate all aspects of care for people living with a rare disease.

The organising committee for Rare Disease Day 2019 in Ireland is an all-island collaboration between patient organisations North and South of the border, whose members represent: Rare Diseases Ireland (RDI)Medical Research Charities Group (MRCG)Irish Platform for Patient Organisations, Science & Industry (IPPOSI)Fighting BlindnessCystic Fibrosis IrelandMSD Action FoundationNorthern Ireland Rare Disease Partnership (NIRDP)

2019-03-06T10:40:23+00:00 27 February 2019|News|Comments Off on Rare Disease Day 2019

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