Since 2017 IPPOSI has conducted a survey of members to guide our work for the coming year under a given heading. The IPPOSI theme for 2019 is Patient Data. If you would like to help shape IPPOSI’s focus in 2019 we would be grateful if you could complete this survey (10 questions; 10 mins approx) by March 31st 2019.
The aim of this survey is to obtain member feedback on a number of proposed actions in 2019, and to gather some baseline data on member/stakeholder perceptions around the collection, access, storage and use of patient data. This will inform IPPOSI our patient, science and industry member perspectives and experiences on areas such as patient data privacy, security, sharing, standards, access etc. More information here.
This 2019 survey follows on from IPPOSI prioritisation surveys conducted in 2017 and 2018 to identify areas of importance in health innovation and access to medicines. The results of these previous surveys can be accessed here.