Irish Platform for Patient Organisations, Science & Industry


At the 2019 IPPOSI AGM on October 7th, the following board members were elected  in place of those retiring:

  • Dr. Louise Hopper, Dublin City University
  • Prof. Orla Hardiman, Trinity College Dublin
  • Mr. David Mc Mahon, Irish Skin Foundation
  • Ms. Nuala Carey, Abbvie
  • Mr. Conchuir Macgloinn, Roche
  • Ms. Nuala Ryan, ICON plc

IPPOSI wishes to take this opportunity to thank the retiring board members for their time, energy and contributions to the IPPOSI board and we look forward to working with our new board members over the coming years.

Appointment of new Communications Manager

We are pleased to welcome onboard Debbie Hutchinson as our new Communications Manager. Debbie previously worked as Communications and Information Officer with the patient organisation, The Migraine Association of Ireland. Previously to this she was a freelance PR professional providing services to SME’s and arts and cultural organisations. Debbie worked as a TV producer for a number of years and she is currently a freelance radio producer having produced award winning documentaries for NEAR FM.

HIQA launches digital learning tools to improve data quality in health and social care

This October HIQA launched two digital learning modules to support health and social care professionals and organisations to improve the quality of the data they collect.The first module,‘Introduction to data quality’ , is aimed at all health and social care professionals and the second module, ‘Developing a data quality framework within health and social care’, is a more detailed learning tool aimed at organisations with a remit to collect, process, use or interpret data or information, and professionals with responsibility for ensuring the quality of that data or information.The modules can be accessed here.

Patient Engagement Open Forum 2019

In September IPPOSI CEO, Derick Mitchell, attended the Patient Engagement Open Forum in Brussels. This two day event was hosted by PARADIGM, PFMD and EUPATI . It explored patient engagement beyond aspirations, looking at the realities of  working  in a multi-stakeholder context to make patient engagement happen. You can review the highlights and outputs from the forum here. 

Patient Ambassadors needed for SCI:COM conference. 

We have 10 free registrations for IPPOSI Patient Members, worth 125 euro each,  for the SCI:COM conference in Dublin on Dec 3rd, 2019. As part of the 2019 SCI:COM theme of examining creativity in science communication, and as part of the 2019 IPPOSI Theme of ‘Patient Data’ we are trialing an IPPOSI-organised Play:Decide game/workshop on Dec 3rd. Successful applicants are requested to take part in this Play:Decide workshop. In order to manage allocation of these free places please forward a 50-80 word ‘expression of interest’  by email to by the deadline of Friday, November 8th, 5pm.  For more information on the Play:Decide game/workshop and to find out more about the application criteria please click here.

The HSE as partners of the EU Horizon 2020 SoCaTel project will host the Transforming Ageing SoCaTel Hackathon featuring 52 participants on Friday evening 15th November and all day Saturday 16th November in the Talentgarden, Claremont Ave, Glasnevin, Dublin.The event will focus on the use of technology to solve issues such as access to and delivery of long-term care services in the home. The Hackathon is organised as a contest between multi-skilled teams, the winner of which will have their idea conceptualised and developed as the best prototype of the ideas put forward during the Hackathon. . Free registration for the event now open on Eventbrite. 

HSE National Health & Social Care Data Dictionary.

The HSE’s Office of the Chief Information Officer has developed a data dictionary for all national health and social care data in Ireland. This data dictionary provides the basis for information integrity. Data Dictionaries for data are useful to describe the ‘rules’ which data in a particular system need to abide by. The HSE’s National Health and Social Care Data Dictionary (NHSCDD) provides a list of key health service terms and concepts, including agreed definitions and protocols. Additional terms, concepts and metrics will be published in January and July each year as agreed by the NHSCDD Governance Board.

2019-11-04T09:46:06+00:0030 October 2019|Newsletters|0 Comments

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