On Wednesday 3 May, IPPOSI is hosting an in-person conference, ‘Building a Data-Sharing Enabled Health Sector in Ireland.’
Taking place at the Clayton Hotel Cardiff Lane in Dublin, this event will provide an opportunity for IPPOSI members and other stakeholders to come together and explore areas of consensus and divergence around tricky topics like sharing health information with patients, sharing health information within the health system, and sharing health information across the broader health sector.
The conference agenda is still being finalised. A tentative agenda can be viewed below:
09:30 Registration and coffee
10:00 Welcome and introduction
10:10 Data sharing in Ireland: setting the scene
Prof. Richard Greene, Chief Clinical Information Officer, HSE and Professor of Obstetrics, UCC
10:30 Panel Discussion: “Fearful of sharing? How can we build our health-data-enabled future?
11:10 Questions and comments
11:30 Coffee Break
11:50 Lightning Presentations
12:45 Lunch
13:45 Parallel Sessions:
Session 1: Data sharing across institutions and borders
Session 2: Data sharing for patient access
Session 3: Data sharing for secondary use
15:00 Panel Discussion: “Starting to share: How are we building our health data future?
15:45 Next Steps
Why explore how to build a data-sharing-enabled health sector in Ireland?
Ten years ago, a review of Information Governance in the UK unearthed a ‘culture of anxiety’ around sharing health information which permeated the health and social care sector. This discovery led to renewed efforts by professionals and the public to find consensus for the safe and appropriate sharing of health information, with the goal of making information sharing which is in the interests of the individual and of public health the rule, rather than the exception.
As Ireland prepares new Health Information Management legislation, it is timely to do our own review of where we stand culture-wise. Are we ready to embrace a data-sharing-enabled health environment? What are we comfortable with? Is there still work to do?
Specifically:
- Access: How do we ready ourselves to give patients full access to their health information? What does access look like? How is access facilitated? Are there plans for access plus management?
- Individual Care: How do we share patient information between health care professionals and other social care providers? How do we involve the patient in this process?
- Secondary Purposes: How do we share for purposes beyond individual care? How do we involve the patient in this process? Do they have any personal agency in terms of sharing information themselves?
- Governance: How do we govern the sharing of health information? What are the major governance issues? Who do we involve in governance issues, and when? What mechanisms do we need?
Interested in attending? Register here.
SPONSORSHIP:
The 2023 IPPOSI Conference is made possible by IPPOSI resources in addition to small, unrestricted grants from the following IPPOSI Industry members:
Boehringer-Ingelheim
Novartis
Pfizer
Roche
