* Note 1: For the purposes of the IPPOSI strategy ‘Health Innovation’ is defined as new and existing Medicines, Interventions (both medical and non-medical), Medical Devices, E-Health Processes & Technologies, Information architecture/infrastructure (i.e. how information will be designed and used)
# Note 2: For the purposes of the IPPOSI strategy, advocacy is defined as the strategic use of IPPOSI representatives to increase awareness and understanding of issues related to patient access to, and involvement in health innovation across government, agency and regulatory spheres. IPPOSI advocacy activities will work in concert with other efforts carried out by patient organisations in the area of access to health innovations. Through a combination of high-level approaches, IPPOSI advocacy efforts will aim to help policy makers, individual agencies and regulators understand how an educated, empowered patient community can support each agency’s mission and business needs.
IPPOSI members were canvassed for their ideas on relevant health topics for IPPOSI to focus on over the two periods of 2017-2018 and 2019-2020.
In summary, three priorities for the period were identified:
Patient access to health innovation: HTA, real-world outcomes, value-based health care, HTA design and development, pricing, reimbursement and access
Data/E-health: Patient registries, electronic health records, information architecture/infrastructure, data standards and standardisation, data quality, bioethics, data protection, privacy
Patient involvement: Person-centred practices and engagement, patient advocacy and empowerment, guidelines, tools, culture change, metrics, coordination of healthcare, chronic disease management
These priorities continue to inform our work. To this end, the IPPOSI Board dedicated 2018 to the theme of Access to Medicines and 2019 to ‘Patient Data’.