Patient Charter Published In February, IPPOSI published A Charter for Patient Involvement in Medicines Assessment & Reimbursement in Ireland. 36 Irish patient organisations signed the Charter, which calls on the government to improve the transparency, accountability and communication on how medicines are assessed & reimbursed by the State. The charter sets out [...]
'BRIDGING HEALTH AND SOCIAL CARE' The 12th annual Rare Disease Day focuses on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families face every day. Rare Disease Day 2019 is an [...]
35 Irish patient organisations have signed a Charter calling for greater patient involvement in the ‘Medicines Assessment & Reimbursement’ process in Ireland. The Charter calls on the government to improve the transparency, accountability and communication on how medicines are assessed & reimbursed by the State. The Charter, co-ordinated by the [...]
Rare Disease Day 2019 Registration is now open for the Irish event to mark Rare Disease Day 2019. The event takes place in Chartered Accountants House on Pearse Street, Dublin 2 from 10am-1pm, Feb 28th 2019. Jointly-organised by IPPOSI, MRCG and RDI, this year's theme is 'Bridging health and social care'. The [...]
The 2019 IPPOSI Patient Education Programme in Health Innovation kicked off on Monday, January 18th with a day-long event that introduced the 25 students to the programme and marked the beginning of Module One: Understanding Clinical Trials, led by the UCD Clinical Research Centre. Patient participants will take part in a [...]
IPPOSI is pleased to announce that we are seeking to recruit a Research & Advocacy Officer (maternity cover) This role ensures that IPPOSI can develop strong, evidence-based policy positions and deliver on an engagement plan that will communicate IPPOSI recommendations for policy related to improving equitable patient access to health innovation. Duration: [...]
European Joint Programme on Rare Diseases Great news for Rare Diseases with the announcement that the European Joint Programme on Rare Diseases (EJP RD) will launch on 1 January 2019. This is a new research partnership between member states and the European Commission, working with a budget of over €100 million, that will aim [...]
On October 8th, 2018, IPPOSI organised a conference designed as a forum for discussions on how Patient-Centered Outcomes can become more frequently measured and used in Irish research and healthcare environments and how this might impact policy, service delivery, funding as well as access to innovation. [...]
The Irish Times spoke to two graduates of the IPPOSI Patient Education Programme - Wendy Costello (iCAN) and Jane Whelan (Migraine Association of Ireland) - ahead of the launch of the 2019 Patient Education Programme. You can read that article here.
IPPOSI's Derick Mitchell and iCAN's Wendy Costello (IPPOSI Patient Education Programme graduate) were interviewed on the Pat Kenny Show on Newstalk about the 2019 Patient Education Programme. You can listen to the interview here.