IPPOSI is pleased to present our 2024 pre-budget submission calling for more investment in digital health solutions; public and patient partnership; and access to medicines and innovation. In 2024, we hope to see real progress delivered around the digitalisation of our health system, in particular the delivery of the first steps towards a shared care record. It [...]
IPPOSI registered members are invited to attend our 17th Annual General Meeting on Tuesday 26 September 2023 from 10:00 - 11:00 a.m. We are conducting the AGM online using the IPPOSI Zoom platform. We will circulate supporting documents closer to the date, but registration for the online meeting is now open. As part of our [...]
European Health Data Space The European Health Data Space aims to create a system of common rules, standards, practices, infrastructure and governance mechanisms across the European Union. The Health Data Space aims to give people greater access and control over their personal health data, allowing them to carry their data with them digitally across [...]
On Wednesday 3 May 2023, IPPOSI hosted an in-person conference, ‘Building a data sharing health sector in Ireland.' We were delighted to be joined by the new CEO of the HSE, the Government Chief Information Officer, the Chief Medical Information Officer working on the new Children’s Hospital, as [...]
Health Information Bill In April 2022, Minister Donnelly announced plans to develop new legislation to address health information management in Ireland. On 17 April 2023, the Minister secured Cabinet approval for the General Scheme for the Health Information Bill. The Bill promises to “ensure timely and secure access to the health information that is [...]
The topic of health information is one of great interest in Ireland, particularly since the advent of Sláintecare, the in-progress Health Information Bill, and the IPPOSI Citizens' Jury on Access to Health Information. Depending on the context or the stakeholder group, many health information terms have different meanings or can be used interchangeably. Multiple [...]
On Wednesday 3 May, IPPOSI is hosting an in-person conference, 'Building a Data-Sharing Enabled Health Sector in Ireland.' Taking place at the Clayton Hotel Cardiff Lane in Dublin, this event will provide an opportunity for IPPOSI members and other stakeholders to come together and explore areas of consensus and divergence around tricky topics like [...]
PLEASE NOTE: The closing date for applications was 6 March 2023, and has now passed. Are you a patient, patient representative, advocate, or carer? Are you interested in engaging with the research and development process for new medicines, medical devices, and health technologies? Then you should consider applying for the 2023 IPPOSI Patient Education Programme [...]
On the 1st of December 2022, IPPOSI facilitated an online discussion on 'Rights-Based Approaches to Accessing Health Information'. The discussion featured a multi-stakeholder panel, including Ruth Davis (Barrister-at-law at the Law Library), Kerry Lawless (IPPOSI Patient Education Graduate and PhD researcher), Dr. Brian McMillan (General Practitioner and Senior Clinical Lecturer at the University of [...]
IPPOSI is pleased to announce the official launch of a Public Education Programme on Genomics! The exploration of the human genome is one of the defining medical ethical issues of our time. It has the potential to improve and save countless human lives. But it doesn’t come without risk! As genomics enters the Irish [...]
