Irish Platform for Patient Organisations, Science & Industry

About Shannon Karpinski

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So far Shannon Karpinski has created 6 blog entries.

IPPOSI Annual Report 2020

On Monday, September 20th, 2021 IPPOSI published its Annual Report for 2020, which highlights the key areas of work completed by the organisation throughout that year. The IPPOSI theme for 2020 was ‘Patients Involved’ which saw several notable outputs including a series of 'digital discussions' the launch of our Citizens' Jury initiative on Access to [...]

2021-09-22T13:25:46+01:0021 September 2021|Events, News|Comments Off on IPPOSI Annual Report 2020

Learning From The Pandemic Response

Evaluating Ireland's COVID-19 pandemic response and discussing its implications for health information in Ireland. We have invited some leaders in the areas of health information and health research to share their experiences of working through the COVID-19 pandemic. This is an opportunity to discuss what went right in Ireland's response, what could have been improved, [...]

2021-09-16T14:21:53+01:0010 September 2021|Events, News|Comments Off on Learning From The Pandemic Response

Verdict from Citizens’ Jury on Access to Health Information

The Citizens’ Jury on Access to Health Information, led by the Irish Platform for Patient Organisations, Science and Industry (IPPOSI), has published its deliberations, setting out six recommendations for policy-makers and expressing a strong preference for greater access to health information in Ireland. After more than 12 hours of online deliberations in April 2021, the [...]

2021-09-10T14:28:35+01:009 September 2021|Events, News|Comments Off on Verdict from Citizens’ Jury on Access to Health Information

IPPOSI Responds to Three Public Consultations

  With a continued focus on the areas of understanding patient data, access to innovation, and patient and public involvement, IPPOSI responded to three public consultations throughout July 2021, including: Consultation 1: The European Health Data Space (EHDS) The EHDS is a new initiative of the European Commission for a portal of health data resources [...]

2021-08-22T21:02:47+01:0018 August 2021|Events, News|Comments Off on IPPOSI Responds to Three Public Consultations

Notice of AGM – Call for new Board Members

IPPOSI registered members are invited to attend our 15th Annual General Meeting on Monday the 20th of September, 2021. Please Note:  The start time of the AGM has changed from 10.00am to 9:00am. This year, due to the ongoing restrictions around the COVID-19 pandemic, we are conducting the AGM online using the IPPOSI Zoom platform [...]

2021-09-10T14:26:56+01:0029 June 2021|News|Comments Off on Notice of AGM – Call for new Board Members

Recommendations For New IPHA-Government Agreement

With negotiations re-starting between the Government and IPHA for a new agreement in relation to the reimbursement of new medicines, IPPOSI have outlined recommendations to ensure that the patient's voice is included in these negotiations. These recommendations have been developed by IPPOSI in consultation with a number of our patient-led boards and committees, as well as from the [...]

2021-05-06T17:24:40+01:006 May 2021|Events, News|Comments Off on Recommendations For New IPHA-Government Agreement

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