Irish Platform for Patient Organisations, Science & Industry

About Shannon Karpinski

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So far Shannon Karpinski has created 25 blog entries.

Webinar on Rights-Based Approaches to Accessing Health Information

On the 1st of December 2022, IPPOSI facilitated an online discussion on 'Rights-Based Approaches to Accessing Health Information'. The discussion featured a multi-stakeholder panel, including Ruth Davis (Barrister-at-law at the Law Library), Kerry Lawless (IPPOSI Patient Education Graduate and PhD researcher), Dr. Brian McMillan (General Practitioner and Senior Clinical Lecturer at the University of [...]

2023-01-20T15:31:11+00:0013 January 2023|Events, News|Comments Off on Webinar on Rights-Based Approaches to Accessing Health Information

IPPOSI Announces Public Education Programme in Genomics

IPPOSI is pleased to announce the official launch of a Public Education Programme on Genomics!  The exploration of the human genome is one of the defining medical ethical issues of our time. It has the potential to improve and save countless human lives.  But it doesn’t come without risk!   As genomics enters the Irish [...]

2022-12-05T13:57:06+00:005 December 2022|Events, News|Comments Off on IPPOSI Announces Public Education Programme in Genomics

Citizens’ Jury on Genomics Verdict Report

The Citizens’ Jury on the Future Use of Genomics in Health Care and Health Research in Ireland, organised by the Irish Platform for Patient Organisations, Science and Industry (IPPOSI), has published its verdict. Setting out 22 recommendations for health policy makers to consider, the 24 jurors are united in their appeal for greater national-level planning [...]

2022-11-07T11:59:45+00:0011 October 2022|Events, News|Comments Off on Citizens’ Jury on Genomics Verdict Report

IPPOSI Supports EUPATI Expert Patient Training

The next EUPATI Patient Expert Training intake is now open for registration! This programme covers the entire lifecycle of medicines research and development (R&D) and aims to build the capacity of patients by providing more information about how they can be involved in each stage of the R&D process. The EUPATI Patient Expert Training is [...]

2022-09-28T14:46:55+01:0028 September 2022|Events, News|Comments Off on IPPOSI Supports EUPATI Expert Patient Training

IPPOSI 2021 Annual Report + New Board Members

On Tuesday, September 20th, 2022 IPPOSI published its Annual Report for 2021, which highlights the key areas of work and impacts achieved by IPPOSI throughout that year. 2021 saw several notable achievements for IPPOSI, including: a series of ‘digital discussions’ on health information 1,017 applications for our Citizens' Jury on Health Information a COVID-19 [...]

2022-10-24T10:53:46+01:0026 September 2022|Events, News|Comments Off on IPPOSI 2021 Annual Report + New Board Members

New Podcast Episode Ft. Prof Colin Doherty

In the third and final episode of our podcast series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Prof Colin Doherty, Consultant Neurologist and Director of the Epilepsy Service at St James's Hospital. They talked about what we can learn from the PiSCES (Providing Individualised Services and Care in Epilepsy) Patient Portal in [...]

2022-08-03T16:37:57+01:005 July 2022|Events, News|Comments Off on New Podcast Episode Ft. Prof Colin Doherty

Notice of 2022 AGM – Call for New Board Members

IPPOSI registered members are invited to attend our 16th Annual General Meeting on Tuesday 20 September 2022 from 10.00-11.00 am. Like last year, due to the ongoing restrictions around the COVID-19 pandemic, we are conducting the AGM online using the IPPOSI Zoom platform account. We will circulate supporting documents closer to the meeting but registrations for the online [...]

2022-06-30T09:38:52+01:0029 June 2022|Events, News|Comments Off on Notice of 2022 AGM – Call for New Board Members

Patient Capacity Building Programme

IPPOSI is pleased to announce the official launch of our pilot Patient Capacity Building Programme! Distinct from our Patient Education Programme, this series of workshops aims to build the capacity, confidence, and leadership skills of the graduates of our education programme, members of the Irish EUPATI National Platform, and our patient members by providing [...]

2022-08-17T11:30:22+01:0015 June 2022|Events, News|Comments Off on Patient Capacity Building Programme

New Podcast Episode ft. Dr Grainne Courtney

In the second episode of our series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Dr Grainne Courtney, HIV and Genitourinary consultant at St James's Hospital and the HSE and former Chief Clinical Information Officer at St James's. They discussed Grainne's role as CCIO in delivering an electronic patient record for in-patients [...]

2022-05-12T11:45:44+01:0012 May 2022|Events, News|Comments Off on New Podcast Episode ft. Dr Grainne Courtney

IPPOSI welcomes new Chair of European Medicines Agency

The Irish Platform for Patient Organisations, Science and Industry (IPPOSI) welcomes the election of Lorraine Nolan, Chief Executive of the Health Products Regulatory Authority (HPRA), to the Chair of the European Medicines Agency (EMA). Lorraine brings a wealth of experience in medicines regulation to the role, together with a strong commitment towards building greater [...]

2022-03-29T11:37:20+01:0029 March 2022|News|Comments Off on IPPOSI welcomes new Chair of European Medicines Agency

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