Irish Platform for Patient Organisations, Science & Industry

About Shannon Karpinski

This author has not yet filled in any details.
So far Shannon Karpinski has created 11 blog entries.

IPPOSI Welcomes the European Parliament Adoption of a New Regulation on Health Technology Assessment (HTA)

  IPPOSI welcomes the adoption by the European Parliament of a new regulation on Health Technology Assessment (HTA). The assessment of innovative medicines, as well as of certain medical devices, medical equipment, and prevention and treatment methods, is changing in Europe with the recent adoption by the European Parliament of a new regulation on health [...]

2022-01-20T12:09:23+00:0020 January 2022|Events, News|Comments Off on IPPOSI Welcomes the European Parliament Adoption of a New Regulation on Health Technology Assessment (HTA)

IPPOSI Responds to Two Public Consultations

In December 2021 and January 2022, IPPOSI responded to two public consultations, including: Consultation 1: The European Commission public consultation on the revision of the general pharmaceutical legislation On 25 November 2020, the European Commission published the Pharmaceutical Strategy for Europe, which aims to create a future-proof regulatory framework for the pharmaceutical industry and promote [...]

2022-01-13T11:43:30+00:0013 January 2022|Events, News|Comments Off on IPPOSI Responds to Two Public Consultations

The Patient Perspective on Access to Health Information

Following our April 2021 Citizens' Jury on Access to Health Information, IPPOSI aimed to further explore public and patient attitudes around access to health information. Our latest report compiles the findings from two new surveys - one of patient organisation leaders, and one of patient organisation members. The questions we asked in these surveys mirror [...]

2021-12-14T11:16:33+00:009 December 2021|Events, News|Comments Off on The Patient Perspective on Access to Health Information

The EU Health Information Agenda

The IPPOSI Digital Discussion Series for 2021 continues in November. For our second digital discussion of 2021 (Tuesday, Nov 2nd, 2021) , we have invited experts in the health data sector to discuss the EU's health information agenda and the preparedness of Ireland to meet its European commitments. Saara Malkamäki (Specialist, Health Data 2030, Sitra) will [...]

2021-10-22T15:29:15+01:0022 October 2021|Events, News|Comments Off on The EU Health Information Agenda

IPPOSI PPI Report and Hub

In 2020, we undertook a survey and invited our members and the key stakeholders from our network to share meaningful examples of PPI in Ireland. With the results from this survey, we have published our PPI Mapping Report which presents 94 examples of public and patient involvement provided by 38 agencies, institutions, universities, and companies [...]

2021-10-13T14:52:18+01:0013 October 2021|Events, News|Comments Off on IPPOSI PPI Report and Hub

IPPOSI Annual Report 2020

On Monday, September 20th, 2021 IPPOSI published its Annual Report for 2020, which highlights the key areas of work completed by the organisation throughout that year. The IPPOSI theme for 2020 was ‘Patients Involved’ which saw several notable outputs including a series of 'digital discussions' the launch of our Citizens' Jury initiative on Access to [...]

2021-10-13T14:51:07+01:0021 September 2021|News|Comments Off on IPPOSI Annual Report 2020

Digital Discussion: Learning From The Pandemic Response

Evaluating Ireland's COVID-19 pandemic response and discussing its implications for health information in Ireland. We have invited some leaders in the areas of health information and health research to share their experiences of working through the COVID-19 pandemic. This is an opportunity to discuss what went right in Ireland's response, what could have been improved, [...]

2021-10-22T14:55:05+01:0010 September 2021|Events, News|Comments Off on Digital Discussion: Learning From The Pandemic Response

Verdict from Citizens’ Jury on Access to Health Information

The Citizens’ Jury on Access to Health Information, led by the Irish Platform for Patient Organisations, Science and Industry (IPPOSI), has published its deliberations, setting out six recommendations for policy-makers and expressing a strong preference for greater access to health information in Ireland. After more than 12 hours of online deliberations in April 2021, the [...]

2021-09-10T14:28:35+01:009 September 2021|Events, News|Comments Off on Verdict from Citizens’ Jury on Access to Health Information

IPPOSI Responds to Three Public Consultations

  With a continued focus on the areas of understanding patient data, access to innovation, and patient and public involvement, IPPOSI responded to three public consultations throughout July 2021, including: Consultation 1: The European Health Data Space (EHDS) The EHDS is a new initiative of the European Commission for a portal of health data resources [...]

2021-08-22T21:02:47+01:0018 August 2021|Events, News|Comments Off on IPPOSI Responds to Three Public Consultations

Notice of AGM – Call for new Board Members

IPPOSI registered members are invited to attend our 15th Annual General Meeting on Monday the 20th of September, 2021. Please Note:  The start time of the AGM has changed from 10.00am to 9:00am. This year, due to the ongoing restrictions around the COVID-19 pandemic, we are conducting the AGM online using the IPPOSI Zoom platform [...]

2021-09-10T14:26:56+01:0029 June 2021|News|Comments Off on Notice of AGM – Call for new Board Members

Subscribe to IPPOSI News

Interested in receiving the IPPOSI newsletter and updates on events? Click the subscribe button