Irish Platform for Patient Organisations, Science & Industry

About Shannon Karpinski

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So far Shannon Karpinski has created 23 blog entries.

2022 Citizens’ Jury on Future Use of Genomics Update

In June, our Citizens' Jury on the Future Use of Genomics met for over 16 hours across four weeks – first coming together to hear from nine witnesses over four online evening sessions (7, 9, 14, 16 June), and then meeting in person in Dublin for one day of deliberations (25 June). The jurors were [...]

2022-08-12T10:30:52+01:0012 August 2022|Events, News|Comments Off on 2022 Citizens’ Jury on Future Use of Genomics Update

New Podcast Episode Ft. Prof Colin Doherty

In the third and final episode of our podcast series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Prof Colin Doherty, Consultant Neurologist and Director of the Epilepsy Service at St James's Hospital. They talked about what we can learn from the PiSCES (Providing Individualised Services and Care in Epilepsy) Patient Portal in [...]

2022-08-03T16:37:57+01:005 July 2022|Events, News|Comments Off on New Podcast Episode Ft. Prof Colin Doherty

Notice of 2022 AGM – Call for New Board Members

IPPOSI registered members are invited to attend our 16th Annual General Meeting on Tuesday 20 September 2022 from 10.00-11.00 am. Like last year, due to the ongoing restrictions around the COVID-19 pandemic, we are conducting the AGM online using the IPPOSI Zoom platform account. We will circulate supporting documents closer to the meeting but registrations for the online [...]

2022-06-30T09:38:52+01:0029 June 2022|Events, News|Comments Off on Notice of 2022 AGM – Call for New Board Members

Patient Capacity Building Programme

IPPOSI is pleased to announce the official launch of our pilot Patient Capacity Building Programme! Distinct from our Patient Education Programme, this series of workshops aims to build the capacity, confidence, and leadership skills of the graduates of our education programme, members of the Irish EUPATI National Platform, and our patient members by providing [...]

2022-06-21T15:44:00+01:0015 June 2022|Events, News|Comments Off on Patient Capacity Building Programme

New Podcast Episode ft. Dr Grainne Courtney

In the second episode of our series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Dr Grainne Courtney, HIV and Genitourinary consultant at St James's Hospital and the HSE and former Chief Clinical Information Officer at St James's. They discussed Grainne's role as CCIO in delivering an electronic patient record for in-patients [...]

2022-05-12T11:45:44+01:0012 May 2022|Events, News|Comments Off on New Podcast Episode ft. Dr Grainne Courtney

IPPOSI welcomes new Chair of European Medicines Agency

The Irish Platform for Patient Organisations, Science and Industry (IPPOSI) welcomes the election of Lorraine Nolan, Chief Executive of the Health Products Regulatory Authority (HPRA), to the Chair of the European Medicines Agency (EMA). Lorraine brings a wealth of experience in medicines regulation to the role, together with a strong commitment towards building greater [...]

2022-03-29T11:37:20+01:0029 March 2022|News|Comments Off on IPPOSI welcomes new Chair of European Medicines Agency

Patient Education Programme Graduation

IPPOSI would like to extend our sincere congratulations to all of the 2021 graduates of our Patient Education Programme! On 7 March, 2022, the graduates and educators came together to receive their certificates and to engage with two panel discussions featuring patient advocates. Click here to view photos from the 'hybrid' event. We would [...]

2022-03-25T14:54:34+00:0025 March 2022|News|Comments Off on Patient Education Programme Graduation

Citizens’ Jury Recruitment Campaign Closes

Having received an incredible 508 expressions of interest for the 2022 IPPOSI Citizens’ Jury on the Future Use of Genomics in Ireland, we are delighted to know that this is a topic that people want to talk about! Thank you to everyone who has expressed their interest! Now we move to the next step [...]

2022-04-21T10:13:41+01:0024 March 2022|Events, News|Comments Off on Citizens’ Jury Recruitment Campaign Closes

Involving the public and the patient in the digitalisation of health care and research

On 14 February 2022, we concluded a series of three discussions around digital health with an inspirational account of the development of Denmark’s Health Portal – Sundhed.dk. Contributors to the conversation included Morten Elbaek Petersen, Head of the Danish Public Health Portal, and panellists Orla Gogarty, Director of Digital Health, Transformation and Partnerships for St. [...]

2022-03-24T11:10:30+00:009 March 2022|Events, News|Comments Off on Involving the public and the patient in the digitalisation of health care and research

Citizens’ Jury on Future Use of Genomics

Jury duty with a difference! IPPOSI is seeking a jury of 25 people broadly representative of the Irish population to join our Citizens' Jury* on Future Use of Genomics in Ireland. March 2022:  Please Note:  Recruitment for the 2022 Jury is now complete:  Click here for an update. Thanks to important [...]

2022-06-28T17:14:05+01:0028 February 2022|Events, News|Comments Off on Citizens’ Jury on Future Use of Genomics

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