Tech Central Interview on Data for Good
The podcast is now available to listen to here and Derick's interview starts 13 m 24s into the podcast.
Newsletter December 2019
PATIENT EDUCATION COURSE GRADUATION Congratulations to the 2019 graduates from the IPPOSI Patient Education Programme. These patients and patient advocates are now enabled with the skills and knowledge to work effectively with Irish and EU-level health research & technology partners, agencies & authorities. A big thank you to our 2019 sponsors – [...]
Patient Ambassadors needed for SCI:COM Conference
We would like to inform IPPOSI patient members that we have organised 10 free registrations for IPPOSI Patient Members for the SCI:COM conference in Dublin on Dec 3rd, 2019. SCI:COM is Ireland's premier conference on Science Communication and this opportunity has been created in conjunction with the conference organisers and with the support of IPPOSI industry [...]
Patients Included Charter
IPPOSI Events are Patients Included™ As part of IPPOSI events, we are committed to incorporating the experience of patients as experts living with their condition, while ensuring they are neither excluded nor exploited. For a number of our events, IPPOSI plans to [...]
EFO-EUPATI Call
SEEKING EXPRESSIONS OF INTEREST The EFO-EUPATI project – which focuses on the future sustainability of EUPATI – is seeking expressions of interest from organisations who can promote and support activities and collaborations within the now-regionalised ENP networks. Three regional networks were established in September of 2018: Region 1: ENPs [...]
IPPOSI has moved offices
IPPOSI has moved offices. Our new address, and phone number, are listed below - direct lines have been discontinued. Our email addresses are still the same. Ph: +353 1 556 8269 Address: 77 Camden Street Lower, Dublin 2, D02XE80
IPPOSI and Health Innovation Hub Ireland
IPPOSI is pleased to announce a Memorandum of Understanding (MoU) with Health Innovation Hub Ireland (HIHI). The MoU is of mutual interest to both organisations and will establish a closer working relationship to maximise IPPOSI and HIHI offerings. The commitments in the MoU will facilitate IPPOSI and HIHI working closely together [...]
Patient Data: Member survey
Since 2017 IPPOSI has conducted a survey of members to guide our work for the coming year under a given heading. The IPPOSI theme for 2019 is Patient Data. If you would like to help shape IPPOSI's focus in 2019 we would be grateful if you could complete this survey (10 questions; 10 [...]
Patient Charter published
35 Irish patient organisations have signed a Charter calling for greater patient involvement in the ‘Medicines Assessment & Reimbursement’ process in Ireland. The Charter calls on the government to improve the transparency, accountability and communication on how medicines are assessed & reimbursed by the State. The Charter, co-ordinated by the [...]
2019 Patient Education Programme kicks off
The 2019 IPPOSI Patient Education Programme in Health Innovation kicked off on Monday, January 18th with a day-long event that introduced the 25 students to the programme and marked the beginning of Module One: Understanding Clinical Trials, led by the UCD Clinical Research Centre. Patient participants will take part in a [...]