Irish Platform for Patient Organisations, Science & Industry

New Podcast Episode ft. Dr Grainne Courtney

In the second episode of our series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Dr Grainne Courtney, HIV and Genitourinary consultant at St James's Hospital and the HSE and former Chief Clinical Information Officer at St James's. They discussed Grainne's role as CCIO in delivering an electronic patient record for in-patients [...]

2022-05-12T11:45:44+01:0012 May 2022|Events, News|Comments Off on New Podcast Episode ft. Dr Grainne Courtney

Citizens’ Jury Recruitment Campaign Closes

Having received an incredible 508 expressions of interest for the 2022 IPPOSI Citizens’ Jury on the Future Use of Genomics in Ireland, we are delighted to know that this is a topic that people want to talk about! Thank you to everyone who has expressed their interest! Now we move to the next step [...]

2022-04-21T10:13:41+01:0024 March 2022|Events, News|Comments Off on Citizens’ Jury Recruitment Campaign Closes

Involving the public and the patient in the digitalisation of health care and research

On 14 February 2022, we concluded a series of three discussions around digital health with an inspirational account of the development of Denmark’s Health Portal – Sundhed.dk. Contributors to the conversation included Morten Elbaek Petersen, Head of the Danish Public Health Portal, and panellists Orla Gogarty, Director of Digital Health, Transformation and Partnerships for St. [...]

2022-03-24T11:10:30+00:009 March 2022|Events, News|Comments Off on Involving the public and the patient in the digitalisation of health care and research

Citizens’ Jury on Future Use of Genomics

Jury duty with a difference! IPPOSI is seeking a jury of 25 people broadly representative of the Irish population to join our Citizens' Jury* on Future Use of Genomics in Ireland. Thanks to important breakthroughs in science, as humans, we are able to learn more and more about our human genome [...]

2022-03-28T12:28:36+01:0028 February 2022|Events, News|Comments Off on Citizens’ Jury on Future Use of Genomics

February Digital Discussion + New Podcast

  To conclude our 2021 Digital Discussion Series on the topic of digital health, we are hosting a discussion (Monday, 14 February 2022) on involving the public and patients in the digitalisation of health care and research. Morten Elbæk Petersen (CEO of the Danish public health portal sundhed.dk) will discuss: What Irish policymakers can learn from [...]

2022-02-16T09:12:04+00:008 February 2022|Events, News|Comments Off on February Digital Discussion + New Podcast

IPPOSI Responds to New Agreements on Pricing and Supply of Medicines

IPPOSI calls for dialogue with patients around access to medicines, and involvement of patients in medicines development, assessment, reimbursement and pricing processes  In May 2021, we shared our patient perspective around the supply & pricing of new medicines to Ireland with both the Government and the industry association – IPHA. After several months of negotiations, [...]

2022-02-01T09:59:54+00:001 February 2022|Events, News, Responses|Comments Off on IPPOSI Responds to New Agreements on Pricing and Supply of Medicines

IPPOSI Welcomes the European Parliament Adoption of a New Regulation on Health Technology Assessment (HTA)

  IPPOSI welcomes the adoption by the European Parliament of a new regulation on Health Technology Assessment (HTA). The assessment of innovative medicines, as well as of certain medical devices, medical equipment, and prevention and treatment methods, is changing in Europe with the recent adoption by the European Parliament of a new regulation on health [...]

2022-01-20T12:09:23+00:0020 January 2022|Events, News|Comments Off on IPPOSI Welcomes the European Parliament Adoption of a New Regulation on Health Technology Assessment (HTA)

IPPOSI Responds to Two Public Consultations

In December 2021 and January 2022, IPPOSI responded to two public consultations, including: Consultation 1: The European Commission public consultation on the revision of the general pharmaceutical legislation On 25 November 2020, the European Commission published the Pharmaceutical Strategy for Europe, which aims to create a future-proof regulatory framework for the pharmaceutical industry and promote [...]

2022-01-13T11:43:30+00:0013 January 2022|Events, News|Comments Off on IPPOSI Responds to Two Public Consultations

The Patient Perspective on Access to Health Information

Following our April 2021 Citizens' Jury on Access to Health Information, IPPOSI aimed to further explore public and patient attitudes around access to health information. Our latest report compiles the findings from two new surveys - one of patient organisation leaders, and one of patient organisation members. The questions we asked in these surveys mirror [...]

2021-12-14T11:16:33+00:009 December 2021|Events, News|Comments Off on The Patient Perspective on Access to Health Information

The EU Health Information Agenda

The IPPOSI Digital Discussion Series for 2021 continues in November. For our second digital discussion of 2021 (Tuesday, Nov 2nd, 2021) , we have invited experts in the health data sector to discuss the EU's health information agenda and the preparedness of Ireland to meet its European commitments. Saara Malkamäki (Specialist, Health Data 2030, Sitra) will [...]

2021-10-22T15:29:15+01:0022 October 2021|Events, News|Comments Off on The EU Health Information Agenda

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