In 2020, we undertook a survey and invited our members and the key stakeholders from our network to share meaningful examples of PPI in Ireland. With the results from this survey, we have published our PPI Mapping Report which presents 94 examples of public and patient involvement provided by 38 agencies, institutions, universities, and companies [...]
Evaluating Ireland's COVID-19 pandemic response and discussing its implications for health information in Ireland. We have invited some leaders in the areas of health information and health research to share their experiences of working through the COVID-19 pandemic. This is an opportunity to discuss what went right in Ireland's response, what could have been improved, [...]
The Citizens’ Jury on Access to Health Information, led by the Irish Platform for Patient Organisations, Science and Industry (IPPOSI), has published its deliberations, setting out six recommendations for policy-makers and expressing a strong preference for greater access to health information in Ireland. After more than 12 hours of online deliberations in April 2021, the [...]
With a continued focus on the areas of understanding patient data, access to innovation, and patient and public involvement, IPPOSI responded to three public consultations throughout July 2021, including: Consultation 1: The European Health Data Space (EHDS) The EHDS is a new initiative of the European Commission for a portal of health data resources [...]
IPPOSI welcomes the announcement of €2 million in funding for the new National Irish COVID-19 Biobank to advance high impact research into COVID-19 and to inform future biobanking initiatives in other important health areas. The funding began from August 1st, 2021, supported by the Dept. of Health and Health Research Board as a collaborative initiative across six [...]
With negotiations re-starting between the Government and IPHA for a new agreement in relation to the reimbursement of new medicines, IPPOSI have outlined recommendations to ensure that the patient's voice is included in these negotiations. These recommendations have been developed by IPPOSI in consultation with a number of our patient-led boards and committees, as well as from the [...]
The IPPOSI Strategic Plan 2021-2024 was launched on March 8th, 2021. The strategy sets out how IPPOSI will advance our patient-led mission over the next four years. The strategy also represents IPPOSI’s commitment to realise meaningful and sustainable patient & public involvement in an ever-changing health environment in Ireland, an environment which is facing an unprecedented number of challenges. [...]
Jury Duty with a Difference! Apply for Citizens’ Jury on Access to Health Information. IPPOSI has launched a nationwide campaign to identify 25 members of the public, broadly representative of the Irish population, willing to step up as members of a Citizens’ Jury to deliberate on the matter of access to health information. Following careful deliberation [...]
Patient Organisations Urge Government to Prioritise People with Chronic and Rare Diseases, of All Ages, in Rollout of COVID-19 Vaccines A coalition of fifteen patient organisations has today (Dec 8th, 2020) written to An Taoiseach and to the Chair of the High-Level Task Force on Vaccination and Immunisation [...]
IPPOSI is inviting applications for the 2021 edition of its successful patient education programme in health innovation. The 2021 programme is led by IPPOSI, in partnership with a number of education partners, and will cover the following topics: Understanding Clinical Trials – delivered by the University College Dublin Clinical Research Centre Regulatory [...]
