On the 1st of December 2022, IPPOSI facilitated an online discussion on 'Rights-Based Approaches to Accessing Health Information'. The discussion featured a multi-stakeholder panel, including Ruth Davis (Barrister-at-law at the Law Library), Kerry Lawless (IPPOSI Patient Education Graduate and PhD researcher), Dr. Brian McMillan (General Practitioner and Senior Clinical Lecturer at the University of [...]
IPPOSI is pleased to announce the official launch of a Public Education Programme on Genomics! The exploration of the human genome is one of the defining medical ethical issues of our time. It has the potential to improve and save countless human lives. But it doesn’t come without risk! As genomics enters the Irish [...]
The Citizens’ Jury on the Future Use of Genomics in Health Care and Health Research in Ireland, organised by the Irish Platform for Patient Organisations, Science and Industry (IPPOSI), has published its verdict. Setting out 22 recommendations for health policy makers to consider, the 24 jurors are united in their appeal for greater national-level planning [...]
The next EUPATI Patient Expert Training intake is now open for registration! This programme covers the entire lifecycle of medicines research and development (R&D) and aims to build the capacity of patients by providing more information about how they can be involved in each stage of the R&D process. The EUPATI Patient Expert Training is [...]
On Tuesday, September 20th, 2022 IPPOSI published its Annual Report for 2021, which highlights the key areas of work and impacts achieved by IPPOSI throughout that year. 2021 saw several notable achievements for IPPOSI, including: a series of ‘digital discussions’ on health information 1,017 applications for our Citizens' Jury on Health Information a COVID-19 [...]
In the third and final episode of our podcast series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Prof Colin Doherty, Consultant Neurologist and Director of the Epilepsy Service at St James's Hospital. They talked about what we can learn from the PiSCES (Providing Individualised Services and Care in Epilepsy) Patient Portal in [...]
IPPOSI registered members are invited to attend our 16th Annual General Meeting on Tuesday 20 September 2022 from 10.00-11.00 am. Like last year, due to the ongoing restrictions around the COVID-19 pandemic, we are conducting the AGM online using the IPPOSI Zoom platform account. We will circulate supporting documents closer to the meeting but registrations for the online [...]
IPPOSI is pleased to announce the official launch of our pilot Patient Capacity Building Programme! Distinct from our Patient Education Programme, this series of workshops aims to build the capacity, confidence, and leadership skills of the graduates of our education programme, members of the Irish EUPATI National Platform, and our patient members by providing [...]
In the second episode of our series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Dr Grainne Courtney, HIV and Genitourinary consultant at St James's Hospital and the HSE and former Chief Clinical Information Officer at St James's. They discussed Grainne's role as CCIO in delivering an electronic patient record for in-patients [...]
On 14 February 2022, we concluded a series of three discussions around digital health with an inspirational account of the development of Denmark’s Health Portal – Sundhed.dk. Contributors to the conversation included Morten Elbaek Petersen, Head of the Danish Public Health Portal, and panellists Orla Gogarty, Director of Digital Health, Transformation and Partnerships for St. [...]
