IPPOSI is pleased to announce the official launch of our pilot Patient Capacity Building Programme! Distinct from our Patient Education Programme, this series of workshops aims to build the capacity, confidence, and leadership skills of the graduates of our education programme, members of the Irish EUPATI National Platform, and our patient members by providing [...]
In the second episode of our series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Dr Grainne Courtney, HIV and Genitourinary consultant at St James's Hospital and the HSE and former Chief Clinical Information Officer at St James's. They discussed Grainne's role as CCIO in delivering an electronic patient record for in-patients [...]
On 14 February 2022, we concluded a series of three discussions around digital health with an inspirational account of the development of Denmark’s Health Portal – Sundhed.dk. Contributors to the conversation included Morten Elbaek Petersen, Head of the Danish Public Health Portal, and panellists Orla Gogarty, Director of Digital Health, Transformation and Partnerships for St. [...]
To conclude our 2021 Digital Discussion Series on the topic of digital health, we are hosting a discussion (Monday, 14 February 2022) on involving the public and patients in the digitalisation of health care and research. Morten Elbæk Petersen (CEO of the Danish public health portal sundhed.dk) will discuss: What Irish policymakers can learn from [...]
IPPOSI calls for dialogue with patients around access to medicines, and involvement of patients in medicines development, assessment, reimbursement and pricing processes In May 2021, we shared our patient perspective around the supply & pricing of new medicines to Ireland with both the Government and the industry association – IPHA. After several months of negotiations, [...]
IPPOSI welcomes the adoption by the European Parliament of a new regulation on Health Technology Assessment (HTA). The assessment of innovative medicines, as well as of certain medical devices, medical equipment, and prevention and treatment methods, is changing in Europe with the recent adoption by the European Parliament of a new regulation on health [...]
In December 2021 and January 2022, IPPOSI responded to two public consultations, including: Consultation 1: The European Commission public consultation on the revision of the general pharmaceutical legislation On 25 November 2020, the European Commission published the Pharmaceutical Strategy for Europe, which aims to create a future-proof regulatory framework for the pharmaceutical industry and promote [...]
Following our April 2021 Citizens' Jury on Access to Health Information, IPPOSI aimed to further explore public and patient attitudes around access to health information. Our latest report compiles the findings from two new surveys - one of patient organisation leaders, and one of patient organisation members. The questions we asked in these surveys mirror [...]
The IPPOSI Digital Discussion Series for 2021 continues in November. For our second digital discussion of 2021 (Tuesday, Nov 2nd, 2021) , we have invited experts in the health data sector to discuss the EU's health information agenda and the preparedness of Ireland to meet its European commitments. Saara Malkamäki (Specialist, Health Data 2030, Sitra) will [...]
In 2020, we undertook a survey and invited our members and the key stakeholders from our network to share meaningful examples of PPI in Ireland. With the results from this survey, we have published our PPI Mapping Report which presents 94 examples of public and patient involvement provided by 38 agencies, institutions, universities, and companies [...]
