'BRIDGING HEALTH AND SOCIAL CARE' The 12th annual Rare Disease Day focuses on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families face every day. Rare Disease Day 2019 is an [...]
35 Irish patient organisations have signed a Charter calling for greater patient involvement in the ‘Medicines Assessment & Reimbursement’ process in Ireland. The Charter calls on the government to improve the transparency, accountability and communication on how medicines are assessed & reimbursed by the State. The Charter, co-ordinated by the [...]
The 2019 IPPOSI Patient Education Programme in Health Innovation kicked off on Monday, January 18th with a day-long event that introduced the 25 students to the programme and marked the beginning of Module One: Understanding Clinical Trials, led by the UCD Clinical Research Centre. Patient participants will take part in a [...]
IPPOSI is pleased to announce that we are seeking to recruit a Research & Advocacy Officer (maternity cover) This role ensures that IPPOSI can develop strong, evidence-based policy positions and deliver on an engagement plan that will communicate IPPOSI recommendations for policy related to improving equitable patient access to health innovation. Duration: [...]
On October 8th, 2018, IPPOSI organised a conference designed as a forum for discussions on how Patient-Centered Outcomes can become more frequently measured and used in Irish research and healthcare environments and how this might impact policy, service delivery, funding as well as access to innovation. [...]
IFIC Ireland in association with the International Foundation for Integrated Care (IFIC), the UCD Centre for Integrated Care and Improvement Studies (UCD CICIS) and the Health Service Executive (HSE) presents “Integrated Health and Social Care in Ireland: How to Achieve Implementation Success”. IPPOSI's Derick Mitchell will be speaking on a panel with [...]
*** UPDATE *** The deadline for applications has passed, and IPPOSI is no longer accepting applications for the 2019 programme. The programme is led by IPPOSI, in partnership with a number of education partners, and will cover the following topics: Understanding Clinical Trials – delivered by the University College Dublin Clinical Research [...]
The 2018 IPPOSI Conference & AGM was on the topic of "Patient-Centred Outcomes in Research and Healthcare". Date: Monday, October 8th, 2018 Venue: Hilton Hotel, Charlemont Place, Dublin 2 Conference Rationale: Ireland needs to embrace a more value based healthcare approach towards meeting our [...]
IPPOSI launched our Annual Theme for 2018 in February of this year. We ambitiously set out a number of actions to complete during the year. This update provides a snapshot on our progress to date. Patient Charter: IPPOSI is working with our patient organisation members to develop a Patient Charter for Involvement in [...]
IPPOSI is seeking to appoint up to three new directors (board members) at the 2018 IPPOSI AGM on October 8th. IPPOSI wishes to take this opportunity to thank two long-serving, outgoing Patient Organisation Board members - Dr Tomás Carroll (Alpha-1 Foundation) and Mr Philip Watt (Cystic Fibrosis Ireland) - for years [...]
