In 2020, we undertook a survey and invited our members and the key stakeholders from our network to share meaningful examples of PPI in Ireland. With the results from this survey, we have published our PPI Mapping Report which presents 94 examples of public and patient involvement provided by 38 agencies, institutions, universities, and companies [...]
On Monday, September 20th, 2021 IPPOSI published its Annual Report for 2020, which highlights the key areas of work completed by the organisation throughout that year. The IPPOSI theme for 2020 was ‘Patients Involved’ which saw several notable outputs including a series of 'digital discussions' the launch of our Citizens' Jury initiative on Access to [...]
Evaluating Ireland's COVID-19 pandemic response and discussing its implications for health information in Ireland. We have invited some leaders in the areas of health information and health research to share their experiences of working through the COVID-19 pandemic. This is an opportunity to discuss what went right in Ireland's response, what could have been improved, [...]
The Citizens’ Jury on Access to Health Information, led by the Irish Platform for Patient Organisations, Science and Industry (IPPOSI), has published its deliberations, setting out six recommendations for policy-makers and expressing a strong preference for greater access to health information in Ireland. After more than 12 hours of online deliberations in April 2021, the [...]
With a continued focus on the areas of understanding patient data, access to innovation, and patient and public involvement, IPPOSI responded to three public consultations throughout July 2021, including: Consultation 1: The European Health Data Space (EHDS) The EHDS is a new initiative of the European Commission for a portal of health data resources [...]
IPPOSI welcomes the announcement of €2 million in funding for the new National Irish COVID-19 Biobank to advance high impact research into COVID-19 and to inform future biobanking initiatives in other important health areas. The funding began from August 1st, 2021, supported by the Dept. of Health and Health Research Board as a collaborative initiative across six [...]
IPPOSI registered members are invited to attend our 15th Annual General Meeting on Monday the 20th of September, 2021. Please Note: The start time of the AGM has changed from 10.00am to 9:00am. This year, due to the ongoing restrictions around the COVID-19 pandemic, we are conducting the AGM online using the IPPOSI Zoom platform [...]
With negotiations re-starting between the Government and IPHA for a new agreement in relation to the reimbursement of new medicines, IPPOSI have outlined recommendations to ensure that the patient's voice is included in these negotiations. These recommendations have been developed by IPPOSI in consultation with a number of our patient-led boards and committees, as well as from the [...]
The IPPOSI Strategic Plan 2021-2024 was launched on March 8th, 2021. The strategy sets out how IPPOSI will advance our patient-led mission over the next four years. The strategy also represents IPPOSI’s commitment to realise meaningful and sustainable patient & public involvement in an ever-changing health environment in Ireland, an environment which is facing an unprecedented number of challenges. [...]
On February 7th, 2021, David McMahon, CEO of the Irish Skin Foundation, was endorsed by the IPPOSI Board as our new chairperson. This followed the stepping down by Ava Battles, CEO of the MS Society of Ireland after 2.5 years as IPPOSI chairperson. On accepting the role David said: “It’s a privilege to take on [...]
