In the second episode of our series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Dr Grainne Courtney, HIV and Genitourinary consultant at St James's Hospital and the HSE and former Chief Clinical Information Officer at St James's. They discussed Grainne's role as CCIO in delivering an electronic patient record for in-patients [...]
The Irish Platform for Patient Organisations, Science and Industry (IPPOSI) welcomes the election of Lorraine Nolan, Chief Executive of the Health Products Regulatory Authority (HPRA), to the Chair of the European Medicines Agency (EMA). Lorraine brings a wealth of experience in medicines regulation to the role, together with a strong commitment towards building greater [...]
IPPOSI would like to extend our sincere congratulations to all of the 2021 graduates of our Patient Education Programme! On 7 March, 2022, the graduates and educators came together to receive their certificates and to engage with two panel discussions featuring patient advocates. Click here to view photos from the 'hybrid' event. We would [...]
Having received an incredible 508 expressions of interest for the 2022 IPPOSI Citizens’ Jury on the Future Use of Genomics in Ireland, we are delighted to know that this is a topic that people want to talk about! Thank you to everyone who has expressed their interest! Now we move to the next step [...]
On 14 February 2022, we concluded a series of three discussions around digital health with an inspirational account of the development of Denmark’s Health Portal – Sundhed.dk. Contributors to the conversation included Morten Elbaek Petersen, Head of the Danish Public Health Portal, and panellists Orla Gogarty, Director of Digital Health, Transformation and Partnerships for St. [...]
Jury duty with a difference! IPPOSI is seeking a jury of 25 people broadly representative of the Irish population to join our Citizens' Jury* on Future Use of Genomics in Ireland. Thanks to important breakthroughs in science, as humans, we are able to learn more and more about our human genome [...]
To conclude our 2021 Digital Discussion Series on the topic of digital health, we are hosting a discussion (Monday, 14 February 2022) on involving the public and patients in the digitalisation of health care and research. Morten Elbæk Petersen (CEO of the Danish public health portal sundhed.dk) will discuss: What Irish policymakers can learn from [...]
IPPOSI calls for dialogue with patients around access to medicines, and involvement of patients in medicines development, assessment, reimbursement and pricing processes In May 2021, we shared our patient perspective around the supply & pricing of new medicines to Ireland with both the Government and the industry association – IPHA. After several months of negotiations, [...]
IPPOSI welcomes the adoption by the European Parliament of a new regulation on Health Technology Assessment (HTA). The assessment of innovative medicines, as well as of certain medical devices, medical equipment, and prevention and treatment methods, is changing in Europe with the recent adoption by the European Parliament of a new regulation on health [...]
In December 2021 and January 2022, IPPOSI responded to two public consultations, including: Consultation 1: The European Commission public consultation on the revision of the general pharmaceutical legislation On 25 November 2020, the European Commission published the Pharmaceutical Strategy for Europe, which aims to create a future-proof regulatory framework for the pharmaceutical industry and promote [...]
