On Wednesday 3 May 2023, IPPOSI hosted an in-person conference, ‘Building a data sharing health sector in Ireland.' We were delighted to be joined by the new CEO of the HSE, the Government Chief Information Officer, the Chief Medical Information Officer working on the new Children’s Hospital, as well as representatives [...]
On Wednesday 3 May, IPPOSI is hosting an in-person conference, 'Building a Data-Sharing Enabled Health Sector in Ireland.' Taking place at the Clayton Hotel Cardiff Lane in Dublin, this event will provide an opportunity for IPPOSI members and other stakeholders to come together and explore areas of consensus and divergence around tricky topics like [...]
IPPOSI – the Irish Platform for Patient Organisations, Science & Industry - welcomes the publication today (Friday, Feb 24th, 2023) of the 'Mazars report' commissioned by the government in 2019 to examine the governance arrangements around the HSE’s drug assessment and reimbursement process. The report has been published in full by Minister for Health, [...]
PLEASE NOTE: The closing date for applications was 6 March 2023, and has now passed. Are you a patient, patient representative, advocate, or carer? Are you interested in engaging with the research and development process for new medicines, medical devices, and health technologies? Then you should consider applying for the 2023 IPPOSI Patient Education Programme [...]
On the 1st of December 2022, IPPOSI facilitated an online discussion on 'Rights-Based Approaches to Accessing Health Information'. The discussion featured a multi-stakeholder panel, including Ruth Davis (Barrister-at-law at the Law Library), Kerry Lawless (IPPOSI Patient Education Graduate and PhD researcher), Dr. Brian McMillan (General Practitioner and Senior Clinical Lecturer at the University of [...]
IPPOSI is pleased to announce the official launch of a Public Education Programme on Genomics! The exploration of the human genome is one of the defining medical ethical issues of our time. It has the potential to improve and save countless human lives. But it doesn’t come without risk! As genomics enters the Irish [...]
The Citizens’ Jury on the Future Use of Genomics in Health Care and Health Research in Ireland, organised by the Irish Platform for Patient Organisations, Science and Industry (IPPOSI), has published its verdict. Setting out 22 recommendations for health policy makers to consider, the 24 jurors are united in their appeal for greater national-level planning [...]
The next EUPATI Patient Expert Training intake is now open for registration! This programme covers the entire lifecycle of medicines research and development (R&D) and aims to build the capacity of patients by providing more information about how they can be involved in each stage of the R&D process. The EUPATI Patient Expert Training is [...]
On Tuesday, September 20th, 2022 IPPOSI published its Annual Report for 2021, which highlights the key areas of work and impacts achieved by IPPOSI throughout that year. 2021 saw several notable achievements for IPPOSI, including: a series of ‘digital discussions’ on health information 1,017 applications for our Citizens' Jury on Health Information a COVID-19 [...]
In the third and final episode of our podcast series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Prof Colin Doherty, Consultant Neurologist and Director of the Epilepsy Service at St James's Hospital. They talked about what we can learn from the PiSCES (Providing Individualised Services and Care in Epilepsy) Patient Portal in [...]
