We would like to inform IPPOSI patient members that we have organised 10 free registrations for IPPOSI Patient Members for the SCI:COM conference in Dublin on Dec 3rd, 2019. SCI:COM is Ireland's premier conference on Science Communication and this opportunity has been created in conjunction with the conference organisers and with the support of IPPOSI industry [...]
2019 IPPOSI Conference & AGM, Oct 7th, 2019, Hilton Hotel, Charlemont Place, Dublin CONFERENCE MATERIAL Conference Programme Patients Included Terminology Explained Conference Photos CONFERENCE OUTPUTS Graphic Representation of Event (click to view) [...]
IPPOSI is pleased to announce that we are seeking to recruit an experienced Communications Manager to join our dynamic team, based in Dublin city centre. The Communications Manager will play an essential role in supporting the delivery of IPPOSI’s objectives and will provide effective and creative communications campaigns in line with IPPOSI’s strategy. [...]
IPPOSI is seeking to appoint up to five new directors (board members) at the 2019 IPPOSI AGM on October 7th. The IPPOSI Board of (non-executive) Directors is made up of 20 representatives from our current membership – Patient Organisations (8), Science (6) and Industry (6). The Board provide strategic direction and governance to [...]
SEEKING EXPRESSIONS OF INTEREST The EFO-EUPATI project – which focuses on the future sustainability of EUPATI – is seeking expressions of interest from organisations who can promote and support activities and collaborations within the now-regionalised ENP networks. Three regional networks were established in September of 2018: Region 1: ENPs [...]
IPPOSI has moved offices. Our new address, and phone number, are listed below - direct lines have been discontinued. Our email addresses are still the same. Ph: +353 1 556 8269 Address: 77 Camden Street Lower, Dublin 2, D02XE80
IPPOSI is pleased to announce a Memorandum of Understanding (MoU) with Health Innovation Hub Ireland (HIHI). The MoU is of mutual interest to both organisations and will establish a closer working relationship to maximise IPPOSI and HIHI offerings. The commitments in the MoU will facilitate IPPOSI and HIHI working closely together [...]
Since 2017 IPPOSI has conducted a survey of members to guide our work for the coming year under a given heading. The IPPOSI theme for 2019 is Patient Data. If you would like to help shape IPPOSI's focus in 2019 we would be grateful if you could complete this survey (10 questions; 10 [...]
'BRIDGING HEALTH AND SOCIAL CARE' The 12th annual Rare Disease Day focuses on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families face every day. Rare Disease Day 2019 is an [...]
35 Irish patient organisations have signed a Charter calling for greater patient involvement in the ‘Medicines Assessment & Reimbursement’ process in Ireland. The Charter calls on the government to improve the transparency, accountability and communication on how medicines are assessed & reimbursed by the State. The Charter, co-ordinated by the [...]
