IPPOSI is pleased to announce that we are seeking to recruit an experienced Communications Manager to join our dynamic team, based in Dublin city centre. The Communications Manager will play an essential role in supporting the delivery of IPPOSI’s objectives and will provide effective and creative communications campaigns in line with IPPOSI’s strategy. [...]
IPPOSI is seeking to appoint up to five new directors (board members) at the 2019 IPPOSI AGM on October 7th. The IPPOSI Board of (non-executive) Directors is made up of 20 representatives from our current membership – Patient Organisations (8), Science (6) and Industry (6). The Board provide strategic direction and governance to [...]
2019 IPPOSI Conference & AGM, Oct 7th, 2019, Hilton Hotel, Charlemont Place, Dublin CONFERENCE MATERIAL Conference Programme Patients Included Terminology Explained Conference Photos CONFERENCE OUTPUTS Graphic Representation of Event (click to view) [...]
SEEKING EXPRESSIONS OF INTEREST The EFO-EUPATI project – which focuses on the future sustainability of EUPATI – is seeking expressions of interest from organisations who can promote and support activities and collaborations within the now-regionalised ENP networks. Three regional networks were established in September of 2018: Region 1: ENPs [...]
IPPOSI has moved offices. Our new address, and phone number, are listed below - direct lines have been discontinued. Our email addresses are still the same. Ph: +353 1 556 8269 Address: 77 Camden Street Lower, Dublin 2, D02XE80
IPPOSI is pleased to announce a Memorandum of Understanding (MoU) with Health Innovation Hub Ireland (HIHI). The MoU is of mutual interest to both organisations and will establish a closer working relationship to maximise IPPOSI and HIHI offerings. The commitments in the MoU will facilitate IPPOSI and HIHI working closely together [...]
Since 2017 IPPOSI has conducted a survey of members to guide our work for the coming year under a given heading. The IPPOSI theme for 2019 is Patient Data. If you would like to help shape IPPOSI's focus in 2019 we would be grateful if you could complete this survey (10 questions; 10 [...]
'BRIDGING HEALTH AND SOCIAL CARE' The 12th annual Rare Disease Day focuses on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families face every day. Rare Disease Day 2019 is an [...]
35 Irish patient organisations have signed a Charter calling for greater patient involvement in the ‘Medicines Assessment & Reimbursement’ process in Ireland. The Charter calls on the government to improve the transparency, accountability and communication on how medicines are assessed & reimbursed by the State. The Charter, co-ordinated by the [...]
The 2019 IPPOSI Patient Education Programme in Health Innovation kicked off on Monday, January 18th with a day-long event that introduced the 25 students to the programme and marked the beginning of Module One: Understanding Clinical Trials, led by the UCD Clinical Research Centre. Patient participants will take part in a [...]
