The next EUPATI Patient Expert Training intake is now open for registration! This programme covers the entire lifecycle of medicines research and development (R&D) and aims to build the capacity of patients by providing more information about how they can be involved in each stage of the R&D process. The EUPATI Patient Expert Training is [...]
On Tuesday, September 20th, 2022 IPPOSI published its Annual Report for 2021, which highlights the key areas of work and impacts achieved by IPPOSI throughout that year. 2021 saw several notable achievements for IPPOSI, including: a series of ‘digital discussions’ on health information 1,1017 applications for our Citizens' Jury on Health Information a COVID-19 [...]
In June, our Citizens' Jury on the Future Use of Genomics met for over 16 hours across four weeks – first coming together to hear from nine witnesses over four online evening sessions (7, 9, 14, 16 June), and then meeting in person in Dublin for one day of deliberations (25 June). The jurors were [...]
In the third and final episode of our podcast series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Prof Colin Doherty, Consultant Neurologist and Director of the Epilepsy Service at St James's Hospital. They talked about what we can learn from the PiSCES (Providing Individualised Services and Care in Epilepsy) Patient Portal in [...]
IPPOSI registered members are invited to attend our 16th Annual General Meeting on Tuesday 20 September 2022 from 10.00-11.00 am. Like last year, due to the ongoing restrictions around the COVID-19 pandemic, we are conducting the AGM online using the IPPOSI Zoom platform account. We will circulate supporting documents closer to the meeting but registrations for the online [...]
IPPOSI is pleased to announce the official launch of our pilot Patient Capacity Building Programme! Distinct from our Patient Education Programme, this series of workshops aims to build the capacity, confidence, and leadership skills of the graduates of our education programme, members of the Irish EUPATI National Platform, and our patient members by providing [...]
In the second episode of our series, Digital Health: Putting People First, IPPOSI CEO Derick Mitchell interviewed Dr Grainne Courtney, HIV and Genitourinary consultant at St James's Hospital and the HSE and former Chief Clinical Information Officer at St James's. They discussed Grainne's role as CCIO in delivering an electronic patient record for in-patients [...]
The Irish Platform for Patient Organisations, Science and Industry (IPPOSI) welcomes the election of Lorraine Nolan, Chief Executive of the Health Products Regulatory Authority (HPRA), to the Chair of the European Medicines Agency (EMA). Lorraine brings a wealth of experience in medicines regulation to the role, together with a strong commitment towards building greater [...]
IPPOSI would like to extend our sincere congratulations to all of the 2021 graduates of our Patient Education Programme! On 7 March, 2022, the graduates and educators came together to receive their certificates and to engage with two panel discussions featuring patient advocates. Click here to view photos from the 'hybrid' event. We would [...]
Having received an incredible 508 expressions of interest for the 2022 IPPOSI Citizens’ Jury on the Future Use of Genomics in Ireland, we are delighted to know that this is a topic that people want to talk about! Thank you to everyone who has expressed their interest! Now we move to the next step [...]
