PATIENT EDUCATION COURSE GRADUATION Congratulations to the 2019 graduates from the IPPOSI Patient Education Programme. These patients and patient advocates are now enabled with the skills and knowledge to work effectively with Irish and EU-level health research & technology partners, agencies & authorities. A big thank you to our 2019 sponsors – [...]
IPPOSI BOARD MEMBERS At the 2019 IPPOSI AGM on October 7th, the following board members were elected in place of those retiring: Dr. Louise Hopper, Dublin City University Prof. Orla Hardiman, Trinity College Dublin Mr. David Mc Mahon, Irish Skin Foundation Ms. Nuala Carey, Abbvie Mr. Conchuir Macgloinn, Roche Ms. Nuala Ryan, [...]
Want to join the IPPOSI board? IPPOSI is seeking to appoint up to five new directors (board members) at the 2019 IPPOSI AGM on October 7th. If you are interested in being considered yo uhave until September 2nd 2019 to apply, and you can learn more about what the role entails, how to apply [...]
Joan Jordan - thank you IPPOSI wishes to thank Joan Jordan for her commitment and contribution to IPPOSI and EUPATI as she moves onto new challenges. Joan has been the EUPATI/IPPOSI Content Co-ordinator since September 2017, and has been a valued and proactive IPPOSI member for much longer. Joan participated in the [...]
IPPOSI Conference + AGM: Register now! IPPOSI is pleased to invite you to our Annual General Meeting and Conference, which will focus on the topic of Electronic Health Records. The event will take place on Monday, October 7th, in the Hilton Hotel, Dublin 2 – register here. More about the conference and [...]
Annual Theme 2019: Dedicated webpage launched Our dedicated Patient Data / Annual Theme webpage is now officially active. We invite you to click here to explore our priorities under this theme for 2019, in particular the October 7th Conference on Electronic Health Records, new topics for the IPPOSI Patient Education Programme, as [...]
IPPOSI has moved offices Our new address is: 77 Camden Street, Dublin 2, D02XE80. We have a new phone number too, which is (+353) 1 556 8269. The old number, and direct lines, have been discontinued so please note these new contact details. The new office is bigger and brighter, and it [...]
Patient Charter Published In February, IPPOSI published A Charter for Patient Involvement in Medicines Assessment & Reimbursement in Ireland. 36 Irish patient organisations signed the Charter, which calls on the government to improve the transparency, accountability and communication on how medicines are assessed & reimbursed by the State. The charter sets out [...]
Rare Disease Day 2019 Registration is now open for the Irish event to mark Rare Disease Day 2019. The event takes place in Chartered Accountants House on Pearse Street, Dublin 2 from 10am-1pm, Feb 28th 2019. Jointly-organised by IPPOSI, MRCG and RDI, this year's theme is 'Bridging health and social care'. The [...]
European Joint Programme on Rare Diseases Great news for Rare Diseases with the announcement that the European Joint Programme on Rare Diseases (EJP RD) will launch on 1 January 2019. This is a new research partnership between member states and the European Commission, working with a budget of over €100 million, that will aim [...]
