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Newsletter December 2019

PATIENT EDUCATION COURSE GRADUATION  Congratulations to the 2019 graduates from the IPPOSI Patient Education Programme. These patients and patient advocates are now enabled with the skills and knowledge to work effectively with Irish and EU-level health research & technology partners, agencies & authorities. A big thank you to our 2019 sponsors – [...]

2019-12-13T14:39:18+00:00 13 December 2019|Events, News, Newsletters|0 Comments

Newsletter October 2019

IPPOSI BOARD MEMBERS At the 2019 IPPOSI AGM on October 7th, the following board members were elected  in place of those retiring: Dr. Louise Hopper, Dublin City University Prof. Orla Hardiman, Trinity College Dublin Mr. David Mc Mahon, Irish Skin Foundation Ms. Nuala Carey, Abbvie Mr. Conchuir Macgloinn, Roche Ms. Nuala Ryan, [...]

2019-11-04T09:46:06+00:00 30 October 2019|Newsletters|0 Comments

Newsletter June & July 2019

Joan Jordan - thank you IPPOSI wishes to thank Joan Jordan for her commitment and contribution to IPPOSI and EUPATI as she moves onto new challenges. Joan has been the EUPATI/IPPOSI Content Co-ordinator since September 2017, and has been a valued and proactive IPPOSI member for much longer. Joan participated in the [...]

2019-07-25T16:46:40+00:00 25 July 2019|Newsletters|0 Comments

Newsletter April 2019

Annual Theme 2019: Dedicated webpage launched Our dedicated Patient Data / Annual Theme webpage is now officially active. We invite you to click here to explore our priorities under this theme for 2019, in particular the October 7th Conference on Electronic Health Records, new topics for the IPPOSI Patient Education Programme, as [...]

2019-05-08T23:36:14+00:00 8 May 2019|Newsletters|0 Comments

Newsletter February 2019

Patient Charter Published In February, IPPOSI published A Charter for Patient Involvement in Medicines Assessment & Reimbursement in Ireland. 36 Irish patient organisations signed the Charter, which calls on the government to improve the transparency, accountability and communication on how medicines are assessed & reimbursed by the State. The charter sets out [...]

2019-03-08T11:35:40+00:00 8 March 2019|Newsletters|0 Comments

Newsletter December 2018

European Joint Programme on Rare Diseases Great news for Rare Diseases with the announcement that the European Joint Programme on Rare Diseases (EJP RD) will launch on 1 January 2019. This is a new research partnership between member states and the European Commission, working with a budget of over €100 million, that will aim [...]

2018-12-12T20:39:21+00:00 12 December 2018|Newsletters|0 Comments
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