Newsletter April 2019

Annual Theme 2019: Dedicated webpage launched Our dedicated Patient Data / Annual Theme webpage is now officially active. We invite you to click here to explore our priorities under this theme for 2019, in particular the October 7th Conference on Electronic Health Records, new topics for the IPPOSI Patient Education Programme, as [...]

2019-05-08T23:36:14+01:00 8 May 2019|Newsletters|0 Comments

Newsletter February 2019

Patient Charter Published In February, IPPOSI published A Charter for Patient Involvement in Medicines Assessment & Reimbursement in Ireland. 36 Irish patient organisations signed the Charter, which calls on the government to improve the transparency, accountability and communication on how medicines are assessed & reimbursed by the State. The charter sets out [...]

2019-03-08T11:35:40+01:00 8 March 2019|Newsletters|0 Comments

Newsletter December 2018

European Joint Programme on Rare Diseases Great news for Rare Diseases with the announcement that the European Joint Programme on Rare Diseases (EJP RD) will launch on 1 January 2019. This is a new research partnership between member states and the European Commission, working with a budget of over €100 million, that will aim [...]

2018-12-12T20:39:21+01:00 12 December 2018|Newsletters|0 Comments

Newsletter October 2018

Patient Education Programme 2019: Deadline approaching! The deadline for applications is fast approaching - midnight on Sunday 18th November! Everything you need to know - including a guide for applicants, testimonial videos, a webinar about the 2018 application process (for reference) and of course the application form are all available on the IPPOSI [...]

2018-11-20T16:37:13+01:00 16 November 2018|Newsletters|0 Comments

Newsletter July 2018

Brexit update Following a meeting in June with the EU Article 50 Taskforce negotiating team from the European Commission, IPPOSI's CEO Derick Mitchell has been invited to participate in a European Parliament event on Sept. 27th, 2018, organised by a number of pan-European health stakeholder organisations. Derick will again be advocating for [...]

2018-08-08T16:33:46+01:00 8 August 2018|Newsletters|0 Comments

Newsletter June 2018

October Conference – register now! 85 of 120 seats are now filled, and registration only opened a week ago. We encourage you to register early. The conference title is: “Patient-Centred Outcomes in Research and Healthcare”, and further information is available on this web page, including a ‘Terminology Explained’ briefing document here. REGISTER HERE [...]

2018-07-05T16:33:56+01:00 5 July 2018|Newsletters|0 Comments
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