European Joint Programme on Rare Diseases Great news for Rare Diseases with the announcement that the European Joint Programme on Rare Diseases (EJP RD) will launch on 1 January 2019. This is a new research partnership between member states and the European Commission, working with a budget of over €100 million, that will aim [...]
Patient Education Programme 2019: Deadline approaching! The deadline for applications is fast approaching - midnight on Sunday 18th November! Everything you need to know - including a guide for applicants, testimonial videos, a webinar about the 2018 application process (for reference) and of course the application form are all available on the IPPOSI [...]
Access to Medicines - latest On the morning of November 7th, at EU House, Baggott St. Dublin, IPPOSI together with the MRCG will host a meeting for patient members only on Access to Medicines. The purpose of this meeting is to build patient consensus on the objectives and format of a dialogue [...]
Brexit update Following a meeting in June with the EU Article 50 Taskforce negotiating team from the European Commission, IPPOSI's CEO Derick Mitchell has been invited to participate in a European Parliament event on Sept. 27th, 2018, organised by a number of pan-European health stakeholder organisations. Derick will again be advocating for [...]
October Conference – register now! 85 of 120 seats are now filled, and registration only opened a week ago. We encourage you to register early. The conference title is: “Patient-Centred Outcomes in Research and Healthcare”, and further information is available on this web page, including a ‘Terminology Explained’ briefing document here. REGISTER HERE [...]
International Clinical Trials Day IPPOSI will be speaking at an event to celebrate International Clinical Trials Day. The event takes place on May 10th 2018 in the Mansion House, Dublin 2, and is organised by the HRB Clinical Research Co-ordination Ireland. This event is fully booked but there is a standby list. [...]
Media training for Patient Members There are three places available for IPPOSI patient members to attend a half-day media training workshop in Boston College, Dublin 2 on Wednesday 25th of April. The workshop runs from 10am – 2.30pm approx. If you would like to be considered, please email communications@ipposi.ie and the places [...]
IPPOSI Prioritisation Survey We are asking ALL MEMBERS to take part in our 2018 prioritization survey, which takes just five minutes to complete. The survey provides you with a direct way to influence what IPPOSI will focus on, so we would be very grateful if you can complete it today. [...]
New Faces in IPPOSI We are delighted to announce the appointment of Susanne Grampe to the role of IPPOSI Executive Assistant. Susanne takes over from Karen Munnelly, and is also currently enrolled as a student in the IPPOSI Patient Education Programme. We also welcome three new IPPOSI board members – Julie Power of Vasculitis [...]
Access to Medicines IPPOSI and MRCG have submitted a joint letter to the Department of Health following the news announced on Nov 15th that a Department-led working group is being established on exploring the challenges in accessing innovative medicines in Ireland. The letter calls for at least two patient representatives to be invited onto [...]
