Irish Platform for Patient Organisations, Science & Industry

Newsletter December 2018

European Joint Programme on Rare Diseases Great news for Rare Diseases with the announcement that the European Joint Programme on Rare Diseases (EJP RD) will launch on 1 January 2019. This is a new research partnership between member states and the European Commission, working with a budget of over €100 million, that will aim [...]

2018-12-12T20:39:21+00:0012 December 2018|Newsletters|0 Comments

Newsletter October 2018

Patient Education Programme 2019: Deadline approaching! The deadline for applications is fast approaching - midnight on Sunday 18th November! Everything you need to know - including a guide for applicants, testimonial videos, a webinar about the 2018 application process (for reference) and of course the application form are all available on the IPPOSI [...]

2018-11-20T16:37:13+00:0016 November 2018|Newsletters|0 Comments

Newsletter July 2018

Brexit update Following a meeting in June with the EU Article 50 Taskforce negotiating team from the European Commission, IPPOSI's CEO Derick Mitchell has been invited to participate in a European Parliament event on Sept. 27th, 2018, organised by a number of pan-European health stakeholder organisations. Derick will again be advocating for [...]

2018-08-08T16:33:46+01:008 August 2018|Newsletters|0 Comments

Newsletter June 2018

October Conference – register now! 85 of 120 seats are now filled, and registration only opened a week ago. We encourage you to register early. The conference title is: “Patient-Centred Outcomes in Research and Healthcare”, and further information is available on this web page, including a ‘Terminology Explained’ briefing document here. REGISTER HERE [...]

2018-07-05T16:33:56+01:005 July 2018|Newsletters|0 Comments

Newsletter March 2018

Media training for Patient Members There are three places available for IPPOSI patient members to attend a half-day media training workshop in Boston College, Dublin 2 on Wednesday 25th of April. The workshop runs from 10am – 2.30pm approx. If you would like to be considered, please email and the places [...]

2018-03-28T17:27:57+01:0028 March 2018|Newsletters|0 Comments

Newsletter January 2018

New Faces in IPPOSI We are delighted to announce the appointment of Susanne Grampe to the role of IPPOSI Executive Assistant. Susanne takes over from Karen Munnelly, and is also currently enrolled as a student in the IPPOSI Patient Education Programme. We also welcome three new IPPOSI board members – Julie Power of Vasculitis [...]

2018-02-13T09:59:05+00:0025 January 2018|Newsletters|0 Comments

Newsletter November 2017

Access to Medicines IPPOSI and MRCG have submitted a joint letter to the Department of Health following the news announced on Nov 15th that a Department-led working group is being established on exploring the challenges in accessing innovative medicines in Ireland. The letter calls for at least two patient representatives to be invited onto [...]

2018-02-13T09:59:06+00:0030 November 2017|Newsletters|0 Comments

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