Patient voices are a central pillar of IPPOSI and we work to harness a coherent and critical voice towards promotion of patient and public involvement in health innovation.
Health services in Ireland are including patient voices in decision making to a greater extent now than ever before. The HSE’s National Strategy for Service User Involvement 2008-2013, the National Patients Forum, the National Patient Experience Survey and the IPPOSI-led Patient Narrative project are examples. Furthermore, the Department of Health is working with IPPOSI and other relevant patient-led organisations in areas such as rare diseases, dementia and others.
In health research, the Health Research Board is prioritizing Patient & Public Involvement (PPI) through its funding schemes and launched a capacity-building ‘PPI Ignite’ call in late 2016.
In 2015, The Irish Health Research Forum defined PPI as a concept and process when individuals meaningfully and actively collaborate in the governance, priority setting, and conduct of research, as well as in summarizing, distributing, sharing, and applying its resulting knowledge.
IPPOSI has facilitated PPI in a number of IPPOSI priority areas such as medicines development, connected health, ehealth and clinical research. Click on the toggles below to see examples of our PPI activities.