How and why the IPPOSI Patient Education Programme was created. (Length = 3 mins, 40 secs)
This programme supports new research and policy advances in areas where the importance of a strong patient voice is called for, but where there is currently a shortage of patient contributors with the right skills set.
The 2021, year-long, e-learning programme includes modules on clinical trials, regulatory affairs and health technology assessment.
The programme is based on IPPOSI’s experience of playing a leading role in the successful European Patient’s Academy for Therapeutic Development (EUPATI) which has developed and implemented a pan-European ‘patient expert training course’ focusing on the medicines R&D process (www.eupati.eu).
Previous graduates of the IPPOSI programme (and Irish-based ‘fellows’ of the pan-EU course) are registered members of the Irish EUPATI National Platform which is part of the 23-country EUPATI National Platform network.
Why did students apply?
What were the programme highlights?
What was hardest about the programme?
Impact on interactions with health workers?
Describe learning about clinical trials
Describe learning about regulatory affairs
The 2021 IPPOSI Patient Education Programme is supported by the Health Research Board (Grant Number: IPPOSI-2020-1), as well as in-kind resources from IPPOSI and the 2021 Programme Education Partners:
- University College Dublin Clinical Research Centre (UCD CRC)
- The Health Products Regulatory Authority (HPRA)
- The Discipline of Pharmacology & Therapeutics, Trinity College Dublin (TCD), in association with the National Centre for Pharmacoeconomics (NCPE) and the Health Information & Quality Authority (HIQA)