The 25 selected jurors, ‘the jury‘, are provided with ‘testimony’ from expert ‘witnesses’ to ensure that various points of view (both partial and impartial) are considered by jurors in arriving at their ‘verdict’

The jury deliberations took take place over six online sessions (each session takes two hours, 12 hours in total). The sessions were held over three weeks in April 2021. The first four online sessions allowed for witness testimony, where witnesses will present and respond to questions from jurors. The final two sessions were reserved for in-depth juror deliberations. The entire jury process is guided by independent facilitators and a rapporteur and was complemented by deliberations via a secure, private, online engagement platform.

Session One Recordings

Witnesses in this session:

  • Neil O’Hare, Prof. of Health Informatics, University College Dublin & Chief Information Officer, Children’s Health Ireland
  • Cathy Duggan, Health Information Lead, Health Information & Quality Authority (HIQA)

Neil O’Hare Presentation Recording

Cathy Duggan Presentation Recording

Session Two

Witnesses in this session:

  • Louise Brent, Irish Hip Fracture Database Audit Coordinator, National Office of Clinical Audit (NOCA)
  • Dmitri Wall, Consultant Dermatologist at Hair Restoration Blackrock, Dublin

Louise Brent Presentation Recording

Session Three

Witnesses in this session:

  • Simon McGarr, Digital Rights Ireland; Olga Cronin, Irish Council for Civil Liberties
  • Richard Corbridge, Chief Information Officer & Director of Innovation, Boots UK

Simon McGarr / Olga Cronin Recording

Richard Corbridge Recording

Session Four

Witnesses in this session:

  • David Smith, Assoicate Prof. of Health Care Ethics, Royal College of Surgeons, Ireland (RCSI)
  • Natalie Banner, Lead for Understanding Patient Data (UPD), an initiative hosted at the Wellcome Trust

David Smith Presentation Recording

Natalie Banner Presentation Recording

Session Five & Six

These final two sessions were reserved for in-depth juror deliberations.  Jurors also engaged with an additional (final) witness from the private sector.

Witnesses in this session:

  • Eamonn Costello, PatientMPower

Eamonn Costello Presentation Recording

Data Protection

To carry out the Citizens’ Jury, IPPOSI will process the data of the participants of the initial surveys and the eventual jury participants. Over 1,000 people have taken the initial & follow-up survey and a further 25 people will participate in the online Citizens’ Jury itself, with up to 5 reserves.

When personal, sensitive and special category data is processed, a Data Protection Impact Assessment (DPIA) must be carried out to identify and mitigate risks to the privacy of data subjects.  A DPIA is necessary to ensure that all risks to the privacy of survey and jury participants are identified and appropriate safeguards are put in place.

The DPIA for the Citizens’ Jury is accessible by clicking here (version 1.4). The IPPOSI DPIA has identified five risks, which are summarised in the DPIA text. The safeguards put in place to mitigate the risks are also summarised on pages 8-11 of the DPIA.

For more information on IPPOSI Privacy policy, click here