In 2012 IPPOSI launched an information campaign about clinical trials – www.clinicaltrials.ie and supporting leaflets – that aimed to inform patients and the general public about taking part in clinical trials. The original IPPOSI information campaign was based on text provided by an FP7 Project, Patient Partner and EGAN. It was applied in the Irish context with the assistance of ICRIN.
In 2014 the site and the leaflets were updated to include age-specific information for children taking part in clinical trials. This work was done in in partnership with the National Children’s Research Centre (NCRC) in Our Lady’s Hospital for Children, Crumlin. The content was written for children of different ages (Under 8 / 8-12 / 13-18) and their parents. The text for the series of leaflets aimed at children participating in a clinical trial was developed by the National Children’s Research Centre, Paediatric Clinical Research Unit, and was reviewed by the Ethics Committee of Our Lady’s Children’s Hospital, Crumlin; Temple Street Children’s University Hospital Research Unit & Child Health Information Centre and IPPOSI.
The booklets are an excellent and popular resource and IPPOSI regularly receives requests from around Europe to use these materials in other countries. The website was launched on May 12th 2014 by Dr Graham Love of the Health Research Board.